The Doctors Show Features My Story with Narcolepsy

by julie on February 8, 2015

narcolepsy the doctors show julie flygare narcolepsy not alone narcoleptic spokesperson wide awake and dreaming memoir 2Tune in to the Doctors TV Show this Monday Feb. 9, I’ll be sharing my journey with narcolepsy – including sleepiness, cataplexy, sleep paralysis and hypnagogic hallucinations . See full information here.

Watch TV interview online:

Web exclusive extended version:

Crafting an honest and accurate portrayal of narcolepsy with the Doctors TV Show was a lot of fun.  I was blown away by their staff’s enthusiasm, interest and genuine care. Recording at the Paramount Studios studio in Hollywood was surreal. 

While the format of this program means that the segments are brief and not every aspect of narcolepsy will be covered, I believe this segment will shed light on the REAL narcolepsy to a broad audience.

This has been an opportunity of a lifetime for me. Thank you for supporting my efforts, you inspire me to keep fighting for a brighter future. Watch the program and learn more here. Enjoy and share!

Julie Flygare Narcolepsy The Doctors TV Show 2

{ 6 comments… read them below or add one }

Caralyn February 9, 2015 at 11:24 am

Awesome! I have idiopathic Hypersomnia/narcolepsy with developing cataplexy. Thanks for getting some truths and awareness out there

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Dan Conway February 9, 2015 at 2:45 pm

I just saw this – thank you Julie for bringing Narcolepsy and Cataplexy to network tv. Well done. Very validating to see this discussed.

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Jessica Murphy February 9, 2015 at 6:24 pm

My name is Jess Murphy and I was diagnosed with narcolepsy with cataplexy in late October 2014. I’m getting my life back, to some degree, with Xyrem and Provigil plus lifestyle modifications including a ketogenic diet. I cannot thank you enough, Julie, for what you do for narcolepsy awareness and research. You’re a great advocate for us all! I can’t wait for you to post the video of your segments on The Doctors TV show. :)

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Paula Slater February 9, 2015 at 6:26 pm

I wish I had cable! I have worked in the health policy arena on and off for 15 years and alongside thousands of physician providers for over a decade. It surprised me, despite years of study, that I had narcolepsy. What surprised me even more, however, was the fact that many of my physician friends and physicians care providers had little more knowledge set than a superficial definition of narcolepsy. Soon I realized why.

It felt like a punch to the gut to acknowledge that my years long search for answers paralleled those of narcolepsy researchers. There hadn’t been much concrete information to teach before now. This sadly means that it will be several more years before this information can be translated into a pharmacotherapy. And joyously, it will only be a few more years.

My hope is that recent developments in sleep medicine will push narcolepsy as a topic to be studied more frequently through Continuing Medical Education (CME). Sleep issues seem to be the foundation of chronic illness, and there are too many chronically ill searching for a name for the cause of their distress. Even if symptoms can only be “managed,” managing the perception of an individual’s struggle starts with a name.

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renate French February 9, 2015 at 7:39 pm

I missed the show darn it! But I have had family and friends call all morning saying how excited they were to see a segment on cataplexy. I have narcolepsy with chronic cataplexy. It’s been 12 years now and it’s so hard to make friends. The few I have I found online and also have what I do. Thank you so so much for bringing awareness to these issues! Warmest hugs to you!

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Michael Duffer February 10, 2015 at 3:06 am

Wonderful to hear about it. Though I missed the airing of it.. Let me know when you can share the video. I would love to see it.

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