sleep memoir

With one week until I take on “one of the most grueling road races in the world,”  I must admit, I entered this race blindly. My heart said “Yes!” before my body and brain weighed in. I wanted to honor my father on Father’s Day weekend. When I began training, I realized this mountain was a bit […]


Room S115 of the U.S. Capitol quickly filled to capacity on Thursday May 31st at 2pm. It was a packed house with standing room only for the Congressional Briefing on the NIH Sleep Disorders Research Plan. Congressional staffers, patient advocates and sleep researchers were all in attendance.  The prestigous presenters outlined the significant health and […]


Arianna Huffington is my hero.  In a recent post, she shared the story of the moment she realized she needed more sleep and asked, “What was the moment you knew you needed to get more sleep? I want to hear your story.”  Here’s mine: “The moment I knew I needed more sleep was when I woke up […]

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This spring, I was so honored to give the Keynote Presentation at the Southern Sleep Society’s 34th Annual Meeting’s Founders Awards Banquet in San Destin, FL.  The Southern Sleep Society is the oldest regional sleep society in America. Their 34th Annual Meeting attracted over two hundred participants including sleep doctors, researchers and technicians. As a […]


There are many ways to climb Mount Washington.  Let’s start with the best:  #1. BY CAMEL:Meet Josh, the first Camel to reach the summit of Mt. Washington! On July 8, 2009, Josh and his entourage left the base at 3:00am to begin the 7.6-mile trek to the summit. Accompanying Josh were two horses named Kid and Mariah, […]


Quit It To Win It

by julie on May 25, 2012

I QUIT! In less than one mile. I felt more exhausted than after finishing the Boston Marathon. How could this be? I was scheduled for one of my hardest training workouts for MWRR, yet I was truly running on empty.   Oddly, this was not an episode of EDS (excessive daytime sleepiness) associated with narcolepsy, I’d […]


The Silver Lining

by julie on May 22, 2012

“The next time you encounter fear, consider yourself lucky.This is where the courage comes in. Usually we think that brave people have no fear. The truth is that they are intimate with fear.” -Pema Chödrön  Today is one of my final hard training days before I take on “one of the most grueling road races in […]


On May 31, 2012, a Congressional Briefing of the 2011 NIH Sleep Disorders Research Plan will take place at 2 p.m. in the U.S. Capitol Building. The Sleep Research Society in conjunction with Congressman Michael Honda organized this event. The Congressional Briefing is open to the public. Patients and interested parties are encouraged to attend. Details below. The […]


On the path to narcolepsy diagnosis, there is an “A-ha!” moment when you find words that accurately describe your experiences. I remember mine perfectly. For one woman, Valentine Bernard, her A-ha! moment came last October at the grocery store: “Bernard had no idea what was wrong with her until she came upon the October 2011 issue of […]


Happy Mother’s Day from REM Runner

by julie on May 13, 2012

“Love me when I least deserve it, because that’s when I really need it.” -Swedish Proverb  This Mother’s Day, I’d like to say thank you – first and foremost to my MOM! Many of my readers may not know that I was home-schooled for 7th & 8th grade. My mom has always been very active […]

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