Sleep Health

Launching Project Sleep’s New Website

by julie on August 22, 2014

This week, we launched Project Sleep’s new website! We’ve created a bright site to match our vision for a brighter future. This will be our launching pad to showcase and expand our efforts.  A few fun pages to explore: “How I Am Curing My Sleep Disorder” Guest Post by Stacy Simera Host a NARCOLEPSY: NOT ALONE event! SLEEP WALK TAMPA […]

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On Thursday April 10, 2014 at 12 noon, the Sleep Research Society (SRS) and the American Academy for Sleep Medicine (AASM) will be hosting an insightful congressional briefing on sleep health and safety in  B-340 RAYBURN HOUSE OFFICE BUILDING. Congressman Mike Honda (D-CA-17) will also be making remarks at this Congressional briefing. SRS leadership will speak […]

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Over 40 people gathered to raise awareness about sleep health and sleep disorders in sunny Jacksonville, FL on March 8, 2014! Sleep Walkers and canine friends in tow, gathered at Bull Park in Atlantic Beach, FL. They registered and collected event t-shirts, wristbands, buttons and festive goodies. Attendees shared their amazing sleep spirit posters. As the local organizer and “Sleep Fairy” for […]

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“EatSleepPlay: Building Health Every Day” is an innovative exhibition at the Children’s Museum of Manhattan with over 70 interactive exhibits. This huge arts installation engages children (and adults) towards making healthy decisions in nutrition, sleep and active play.   As reported by the New York Times:The “Sleep” section illustrates all the functions the body performs during nonwaking […]

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In honor of National Sleep Awareness Week, join me for the 3rd Annual National Sleep Walk in Washington DC! Celebrating sleep health & sleep disorder awareness When: Sunday March 3, 2013 at 10:00 a.m.
Where: Lincoln Memorial Reflecting Pool Steps,
 National Mall, Washington DC (view google map)
Who: Free for all who register online. (First 100 registrants receive t-shirt!)
What to bring: Walking shoes & […]

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I’m thrilled to share my guest blog post, “Notes on Narcolepsy: Part 3 – From the Patient’s Perspective,” on Psychology Today’s “The Land of Nod” Blog by Dr. Shelby Harris. Dr. Harris is a friend, a clinical psychologist and the Director of the Behavioral Sleep Medicine Program at Montefiore Medical Center. For this post, she asked me to […]

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[Photo: Julie with Dominique Friend, Sickle Cell Disease Advocate] This Wednesday, I had the honor of speaking on the Patient Advocate Panel at the “InnovationPharm Event” hosted by Siren Interactive, in conjunction with the 7th Annual Rare Disease and Orphan Drug Leadership Congress in Philadelphia, PA. The round-table discussion over dinner focused on how pharmaceutical companies can […]

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Heartbeats: Finding Mine Again

by julie on July 17, 2012

“Where there are no words… know the silences are carrying the thoughts and prayers of all who love you.” -Dawn Dais  “What is this?” I wondered, placing my hands on my collar bone to get as close as possible to the problem. I sat in my parked car and looked out into the rain. Six […]

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Before I Die…

by julie on July 16, 2012

“Before I die…” caught me off-guard on Saturday. I was driving down 14th street NW in DC, when I slammed on the brakes and pulled over. I didn’t know what to expect, but the beautiful messages of hope and love made my day! I took photos but  didn’t contribute to the wall. I mulled it over […]

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The Summer 2012 edition of Community Magazine is out and hotter than ever! I really enjoyed writing the cover story and working with Caring Voice Coalition’s team – they are passionate about patients! Check out my feature narcolepsy article, “In Sickness and In Health” pg. 16-19:  [issuu width=420 height=272 backgroundColor=%23222222 documentId=120627200108-e7727450584c4c56af6093c6d21d4463 name=cvc_summer2012 username=rocketpop tag=cvc unit=px v=2] […]

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