Sleep Advocacy

“One day you finally knew what you had to do, and began…” — Mary Oliver, The Journey Ten years ago, I ended my silence. I started writing a memoir about narcolepsy and moved to DC to begin advocating. The last decade has been a whirlwind, the lowest of lows and highest of highs, and all […]


REM Runner Attends SLEEP 2012 Conference

by julie on June 18, 2012

I had the honor of attending SLEEP 2012 in Boston, MA last week. This conference brought together sleep doctors and researchers from around the world. I volunteered at Wake Up Narcolepsy’s exhibition hall booth. It was great to see familiar faces and meet many new people.  Narcolepsy was very well represented at SLEEP 2012 with […]


Room S115 of the U.S. Capitol quickly filled to capacity on Thursday May 31st at 2pm. It was a packed house with standing room only for the Congressional Briefing on the NIH Sleep Disorders Research Plan. Congressional staffers, patient advocates and sleep researchers were all in attendance.  The prestigous presenters outlined the significant health and […]