What does NARCOLEPSY: NOT ALONE mean to you?

What resonates with you? I created this word-collage using popular words from NARCOLEPSY: NOT ALONE campaign blog posts. For me, the words “connect”, “badass” and “tears” stand out. I love that positive and negative experiences are captured here. No matter where you are on your journey, your feelings are valid and normal, its all part of  the narcolepsy roller-coaster.…

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Congratulations Winners: Narcolepsy Awareness Giveaway!

Thank you to everyone who submitted new NARCOLEPSY: NOT ALONE photos during the First Birthday Giveaway Contest! I finally just drew the winners: Rayanne in the UK Kellie in Florida Suzy in Australia Congratulations! I will mail your prize-packs this week with over $60 worth of narcolepsy awareness gear including: 2 new infographic posters (one for you and…

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Narcolepsy Keynote Speaker in Australia!

Australia, here I come! I’m beyond honored and thrilled to announce that I will be a keynote speaker for the First Patient Conference hosted by Narcolepsy Support Australia on the Gold Coast in Queensland on May 1-3, 2015. Narcolepsy Expert Extraordinaire, Dr. Emmanuel Mignot is the other confirmed keynote speaker! In addition, I will present sessions on…

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NARCOLEPSY: NOT ALONE Visits the Dominican Republic

Last week, I traveled to the Dominican Republic on vacation with my boyfriend. Knowing the Dominican Republic was not yet included in the NARCOLEPSY: NOT ALONE campaign, I was SO excited to personally add the 38th country to our amazing international photo series. In a rush to pack, I forgot my NARCOLEPSY: NOT ALONE paper…

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Narcolepsy on The Doctors Show

On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate,…

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“What is it like to have Narcolepsy?” Communication Tips

Narcolepsy is a neurological disorder of the sleep/wake cycle affecting 1 in every 2,000 people. As a person with narcolepsy, it can be overwhelming to explain the symptoms and affects on life. Typical Questions about Narcolepsy and Simple Answers: Provided by Julie Flygare’s Narcolepsy Mobile App – FREE download today! Q: What is narcolepsy?A: Narcolepsy is a neurological…

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Sleep Walk Jacksonville Shines Light on Sleep Health & Sleep Disorders – Guest Post by Dietra Mohrman

Over 40 people gathered to raise awareness about sleep health and sleep disorders in sunny Jacksonville, FL on March 8, 2014! Sleep Walkers and canine friends in tow, gathered at Bull Park in Atlantic Beach, FL. They registered and collected event t-shirts, wristbands, buttons and festive goodies. Attendees shared their amazing sleep spirit posters. As the local organizer and “Sleep Fairy” for…

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NARCOLEPSY: NOT ALONE Hits 1,000!

Today, the NARCOLEPSY: NOT ALONE campaign surpassed 1,000 photos. This stunning photo series highlights the SUPERSTARS of narcolepsy and their supporters in all 50 U.S. States and 37 countries around the world, proving narcolepsy is REAL and we are NOT ALONE! This campaign is changing lives. “Clayton didn’t want anyone knowing he had narcolepsy,” described his mother, Bethany.…

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10 Things You Didn’t Know About Narcolepsy

In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy:  10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious…

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Back by Popular Demand – NARCOLEPSY: NOT ALONE t-shirts!

For 9 more days, NARCOLEPSY: NOT ALONE t-shirts are back on sale. T-shirts will arrive to you by Suddenly Sleepy Saturday, March 8, 2014, so we can wear them with pride on National Narcolepsy Day! International orders, please contact me directly at REMRunner01@gmail.com and I will help you fulfill the order myself. Thank you so much…

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