Random Remmie Explains Narcolepsy & Sleep Cycle

by julie on September 19, 2013

“Narcolepsy explained so simply a caveman could understand it.”

 

You may remember Random Remmie from this previous post, but recently she’s became a movie star, featured in two amazing educaitonal videos. The purpose of these videos is to explain narcolepsy to classmates of children with narcolepsy so they can better understand. Please take a few minutes to watch these, you will not be disappointed!

Thank you to Julie Barfuss for creating these amazing educational tools!

{ 10 comments… read them below or add one }

Carrie-Ann Burns September 19, 2013 at 3:34 pm

I love everything Julie does, and the Random Remmie is amazing!! The picture she did for your birthday was outrageously cute! And this video made me cry, i love it. Fav part is leading up to the 3:49 mark.

Reply

Julie Barfuss September 19, 2013 at 8:06 pm

Thank you so much Carrie-Ann :) You are awesome!

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Janine September 20, 2013 at 1:15 am

Thank you Julie. These videos are fabulous. My daughter NwC (18) is now approaching the workforce and uni. Something similar for workplace education would be so useful. There is an analogy my daughter uses for her energy you may like to incorporate somewhere; ” I feel like a half charged phone, then when I’ve done (. ? Eg washed hair. Walked to shops etc) that’s it for the the day. .
My power bars are all used up and I need to recharge” . I use this when trying to explain her sudden sleepiness while out at dinner or visiting etc. and people seem to comprehend the impact of N a little clearer.

Regards,
Janine

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Julie Barfuss September 26, 2013 at 9:09 pm

Hi Janine,

I love your daughter’s analogy! She’s exactly right. And thank you for the ideas.

If only showering and looking proper wasn’t a requirement for this world :)….even cooking, laundry, driving, etc…. :)

Thank you for being an awesome mom and helping others understand your daughter. That makes me weepy!

Julie B.

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Cindy September 20, 2013 at 3:58 pm

I shared this to my Facebook page. I cannot believe it, but I think I may have been narcoleptic since I was a child. I always suspected I may have had it since I was a teen, but these videos made it crystal clear of me…I just know it will help kids and parents get help earlier than I did. I wasn’t diagnosed properly until 2010. Thanks Julie
And Julie

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Julie Barfuss September 26, 2013 at 9:14 pm

Cindy,

Thank you for sharing the video, and thank you for your comment. It makes me feel less alone with every comment I’ve received. I love feeling less alone!

Julie B.

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Cindy September 30, 2013 at 6:36 pm

Julie, I know how you feel. Just by engaging conversations on Julie F. blog makes me feel less “alone”. Since I was diagnosed in 2009, I woke up from a long sleep and became a hermit! I am working toward over coming this at the present. I love your effort! Keep it up. I will as well :) cindy

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Jennifer Taylor September 23, 2013 at 5:27 pm

I love this! I’ve had Narcolepsy for over 10 years now, and its hard to explain! This is awesome. I am sharing this to my facebook page as well. Thank you Julie, I admire you! I’ve never seen anything like this, and I follow your blog everyday. Thank you for making me feel no alone!

Jennifer

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Julie Barfuss September 26, 2013 at 9:05 pm

Jennifer,

Thank you so much for sharing the video and for your sweet comment :)

Julie B.

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Julie Barfuss September 26, 2013 at 9:17 pm

Julie F,

Thank you again for sharing this :)…AND for ALL you do for US!

Julie B

Reply

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