On Sept. 11, 2014, I will present a TED-style talk at “Disruptive Innovations” in Boston, MA. My 12-minute speech will discuss: “How a Patient Helped Define a New Clinical Endpoint in Narcolepsy: Diagnosed with narcolepsy with cataplexy in 2007, award-winning author and founder of Project Sleep, Julie Flygare, shares her story on how she helped define a clinical endpoint with the FDA and what this can mean for the future of the drug developed.”
I LOVE the conference description:
“This is the only conference truly dedicated to exploring and addressing where there is significant innovation in clinical trials. Radical Thinkers are Especially Welcomed.
We bring together an exceptional audience of out-of-the-box thinkers determined to make clinical trials more affordable, efficient, with higher quality data and a far better experience for patients. This conference is designed to be engaging in a highly informative format, similar to the style of TED events.”
I began preparing my speech last weekend, but have a long way to go. I’ll present a first draft version this weekend for my Toastmasters club. From there, I’ll be revising and rehearsing like mad until September 11th.
Oddly, many different parts of my life seem to be coming together in one speech – my FDA efforts, legal background, passion for persuasive speaking and love of creative non-fiction. I hope to weave it all together into a magical 12-minute masterpiece.
I’m honored to showcase the narcolepsy community’s FDA Initiative and advocate for greater patient representation in clinical research development. I hope to make you proud!
UPDATE: Watch my full speech here:
Watch my interview on narcolepsy, FDA & Project Sleep:
OTHER RECENT SPEAKING ENGAGEMENTS:
UPCOMING SPEAKING ENGAGEMENTS:
- Current Concepts in Sleep in St Pete Beach, FL (Aug. 29-30, 2014)
- Narcolepsy Support Australia Patient Conference in Queensland, Australia (May 1-3, 2015)
- Nova Southeastern College of Medicine and Health Professions Division in Ft. Lauderdale, FL (May 7-9, 2015)