Praise for “Wide Awake and Dreaming: A Memoir of Narcolepsy”

by julie on December 13, 2012

So excited to share my very first book review here! Written by the amazing blogger Amanda of “Small Steps: A teenager’s look at living with multiple chronic illnesses including an undiagnosed condition, narcolepsy, cataplexy and gluten and lactose intolerance.”  Thank you so much, Amanda!

What the experts are saying about my book:

“Julie’s memoir describes with eloquence the transformation of a life by narcolepsy,
from dreams to nightmares.”

Emmanuel Mignot, M.D. Ph.D.
Director, Stanford University Center for Sleep Sciences 
Professor of Sleep Medicine, Stanford School of Medicine

“If you want to find out what it is like to have narcolepsy, you must read Wide Awake and Dreaming.”

Eveline Honig, M.D., M.P.H.
Executive Director, Narcolepsy Network, Inc.

“Julie is all about helping others to empower themselves; to make their journey into the unknown a little less scary than it was for her. She uses her own life experiences to teach us how to find humor, and hope, in our own health circumstances.”

Michelle King Robson
Founder and Chairperson, EmpowHER

“An inspirational story of defying the odds.” 

Amanda
Small Steps blogger (Read full review here)

“A tender and compelling tale of a young woman’s frightening journey, attempting to make sense of medical symptoms associated with a disorder of which few physicians are aware or comprehend.”

Stephen H. Sheldon, D.O., F.A.A.P.
Director, Sleep Medicine Center, Ann and Robert H. Lurie Children’s Hospital of Chicago
Professor of Pediatrics, Northwestern University Feinberg School of Medicine

“Narcolepsy is so often misunderstood and patients frequently feel alone. Julie’s memoir is a relatable, comforting account that everyone with narcolepsy or who knows someone with narcolepsy should read.”

Mali Einen
PWN and Clinical Coordinator, Stanford University Center for Narcolepsy

“This eloquent memoir will provide solace, hope and strength to others dealing with such a highly misunderstood and stigmatized disorder.”

-Shelby Freedman Harris, Psy.D., C.BSM
Director of the Behavioral Sleep Medicine Program, Montefiore Medical Center’s Sleep-Wake Disorders Center
Assistant Professor of Neurology and Psychiatry, Albert Einstein College of Medicine

 

{ 4 comments… read them below or add one }

ashley January 22, 2013 at 4:52 pm

Reading Julie’s book was comforting to me. I felt like I was staring at the pages of my life. For once my condition was explained and put in perspective. At times when my narcolepsy was causing me to have a bad day I would turn to Julie’s book. My loved ones also read the book. It helped them to better understand the struggles I face on a daily basis.

Reply

julie January 22, 2013 at 4:55 pm

Ashley, Thank you so much for reading my book, Wide Awake and Dreaming. I’m so glad it was comforting and helped your loved ones better understand your struggles. We are in this together, one step at a time, building a brighter future for narcolepsy. Big smiles and many thanks, Julie

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Kim April 3, 2013 at 8:04 am

And a wonderful book. I read it in 4 days because I could not put it down. I don’t have Narcolepsy, but have the chronic illness of Vasculitis. I could relate so much to the the waiting to be dx, to the problems of symptoms, understanding by family, friends and even outsiders, to the horrible medicines and side effects and even the personal struggle. You have captured it all so beautifully. Also the battle to overcome these issues to run a marathon is so inspiring. Thank you for writing this book.

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julie April 3, 2013 at 12:31 pm

Hi Kim – thank you SO much for reading my book. I’m so sorry to hear you have Vasculitis but I’m glad you could relate to so much in my book. By meeting people with other conditions, I’ve learned that we have some many similar battles. It’s great to know we aren’t alone. I’m beyond honored that you enjoyed my book. With gratitude, Julie

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