Join Julie for International Narcolepsy Broadcast on Suddenly Sleepy Saturday

by julie on February 24, 2014

Screen shot 2014-02-24 at 4.17.20 PMJoin me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson.
Register below for details and event giveaways! 

Screen shot 2014-02-24 at 4.26.08 PM

About the presenter:
Julie Flygare is the award-winning author of Wide Awake and Dreaming: A Memoir of Narcolepsy, the creator of the NARCOLEPSY: NOT ALONE international awareness campaign and the founder of Project Sleep, a new non-profit organization. Project Sleep’s signature Sleep Walk event series celebrates sleep health and sleep disorder awareness across America.

Share with friends and family! Great for PWNs, supporters, health care professionals and those learning about narcolepsy for the first time.

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{ 16 comments… read them below or add one }

Melissa Hobbs February 24, 2014 at 10:52 pm

Thank you for putting more focuse on narcolepsy.

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julie February 24, 2014 at 10:54 pm

You’re so welcome. I’m beyond excited for this event!

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Linda Behrends February 25, 2014 at 12:12 am

I let everyone on my facebook know that if they want to understand me better then they need to join you. Tired of my 10 and 11 year having to explain that I’m not going to fall asleep like they show on TV.

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julie February 25, 2014 at 12:52 am

Thank you, Linda! This will be a great opportunity for people new to narcolepsy. We’ll laugh. We’ll cry. We will raise awareness about the REAL narcolepsy!

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Jeff Smithson February 25, 2014 at 1:31 am

Julie
Thanks for the opportunity to talk with others. This can only serve to help inviduals and families share their challenges as well as to celebrate the wins!

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julie February 25, 2014 at 1:47 am

You’re so welcome, Jeff. This will be a presentation-style event but I hope to have more discussion-based events in the future. Thank you so much.

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Wendy February 25, 2014 at 2:49 am

Where is a good site to order narcolepsy shirts/pens! I’m standing in the gap for my 7 year old son who has recently been diagnosed and I want to raise awareness :) can’t wait for this live broadcast

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cindy parker February 25, 2014 at 4:56 am

Thank you so much for all that you do for all of us that live day in and day out with this disease. I do now try to find alot of positive to come out of this. And one is to share what I have learned over the past few years that I totally did not know. It took me 3 years to finally really accept and let anyone know I had it with the exception of my family. It is people, such as yourself who helped me along the way to not be ashamed of it or think I was crazy, let alone others thinking I was.
If I can help one person not feel the way I felt for several years, then I have accomplished what I love to do.
You are a true Inspiration to me along with so many others . Thank you for that!!
I look very forward to your presentation.

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julie February 25, 2014 at 7:46 am

Thank you, Cindy! I couldn’t agree more – it’s so amazing to be part of such an inspiring community!

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Carrie-Ann Burns March 4, 2014 at 3:20 pm

You best believe i will be tuning in! With a non-pwn too who is also interested in listening! :D

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Sarah Lovell March 7, 2014 at 9:53 am

Hi Julie!
Sorry for being a bit slow, but I can’t seem to find where I register for Suddenly Sleepy Saturday. Will I be able to listen to it in the UK? If so, what station do I tune in on? Many thanks :)
Sarah
xxxxx

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julie March 7, 2014 at 5:21 pm

Hi Sarah, Thank you for your interest in the broadcast! The registration should be above on this page, asking for your name, email address? Let me know if it’s not there for any reason. Happy Sleep Week, lady! -Julie

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April-Scarlett Lee March 8, 2014 at 4:12 am

I wont miss it!… I think that’s 9 or 10pm for UK, ahhh im going to do my very best to stay awake!!!! LOL , I will sellotape my eyelids open if I have to XD

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julie March 8, 2014 at 6:14 am

Thank you, my dearest April-Scarlett! If you fall asleep, no worries, it will be up on youtube the next day, hopefully if the technology gods are on my side. :-)

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Cindy College March 8, 2014 at 5:46 am

Hi Julie,
A HUGE thank you for everything you do and have done to raise awareness on Narcolepsy. You are truly the “Face Of Narcolepsy”. Everything that is happening because of YOU. I’m so excited for you!!
(((hugs)))
♡ ♡ ♡ ♡
Cindy College (Caitlyn too!! She loves you!!)

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julie March 8, 2014 at 6:15 am

Thank you for your incredible support, Cindy and Caitlyn. You are the SWEETEST! I feel so very lucky and grateful for such an amazing community. You make this SO worth it! And with that, I better finish my preparations. ;-)

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