Narcolepsy Network Conference 2013 – See you in Georgia!

by julie on October 17, 2013

Julie Flygare narcolepsy Book Signing

This weekend, I will be speaking and signing books at the 28th Annual Narcolepsy Network Conference in Atlanta, GA. This is always an exciting weekend for me – as I get to see old friends and meet many new friends!

wide awake and dreaming aberrations narcolepsy network conference 2013

Books:

I’m offering a discount conference rate on personalized signed copies of Wide Awake and Dreaming: A Memoir of Narcolepsy. I’m also doing a VERY COOL promotion with Aberrations (by Penelope Przekop), a fantastic novel about a young woman with narcolepsy.

The first ten people to purchase my book at the conference will receive a free copy of Aberrations! Stop by my table to learn more.

Conference Sessions: 

I am leading four sessions this year.

  • Wide Awake and Dreaming: A Memoir of Narcolepsy” – From a Dream to Reality
    Description: 
    Author Julie Flygare will share challenges, successes and tips from her writing and publishing process. She will read select passages from her memoir and answer questions from readers and aspiring writers.
  • Narcolepsy Advocacy Update on the FDA Patient Focused Initiative (co-leaders Julie Flygare and Mark Patterson)
    Description: Learn about the FDA’s Patient Focused Drug Development Initiative (PFDDI) and narcolepsy’s inclusion in the program. Julie and Mark will recap the Sept 24, 2013 FDA Narcolepsy Meeting, provide guidance for writing comments to FDA by Nov. 24, 2013 and explain where we go from here.  
  • Communicating Narcolepsy in Everyday Life (for Young Adults)
    Description: Together, we will explore strategies for communicating effectively about narcolepsy in everyday life with family, friends, doctors, co-workers, teachers, peers and strangers alike. These invaluable tools will empower you to speak proudly about your experience with narcolepsy.
  • Narcolepsy and Your Social Life (for Young Adults)
    Description: As a young adult, narcolepsy can have a huge impact on your friendships and dating life. We will talk through issues like finding supportive friends, breaking plans when we aren’t feeling well, medication, drinking/not drinking, disclosing narcolepsy on dates, etc. This session offers support and tips for building positive supportive relationships with friends and significant others. 

Video from last year’s conference:

See you in Georgia!  ;-)

{ 5 comments… read them below or add one }

The Dreamer October 18, 2013 at 1:44 am

Darn it, I forgot the copy of your book that I got when it first came out that I was going to see about getting you to sign.

Not that I necessarily need another signed copy….but since I got the the other one, I had thought that I would get this other one made out to ebay….jk. Actually, to give to my mom…even though I’m not sure I’d want her to be getting any ideas….

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Kerry October 18, 2013 at 5:40 pm

Julie, good luck and have fun at the conference!! I wish I could be there this year to be in your sessions and hear other great presentations — maybe next year!

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Donna L. Haring October 19, 2013 at 3:35 pm

Julie & Everyone,

Sending telepathic thoughts and hoping to read mind
Currently severe cataplexy attacks have me in a bind
Just transferred to Long-Term Care last night
Bet your Narcolepsy Network Conference sessions will be out of sight
Optimistic attitude will see me through without a doubt
Humor, moderate exercise, mixed with rest, make me smile instead of pout
Writing, as well, my main outlet for both positive and negative stress
Positive vibes, I’m sending your way for nothing but the best
Wishing conference is informative, fun, hoping to see video as form of distraction,
Sure your lead sessions will be the main attraction.

Sincerely,

Donna L. Haring
PWN and Cataplexy who is not letting it get her down

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chrys October 22, 2013 at 2:26 pm

Thanks for signing the book for my son. Great Conference!

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Randy P October 23, 2013 at 6:48 pm

Julie – thanks for your willingness to chat and listen to my family’s story at the conference. Your book helped me so much to understand what my wife and kids are going through. We are lucky to know you and happy to be your first South Dakotan’s in the Not Alone campaign.

Best wishes – working on MT!!!

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