Second Narcolepsy Awareness Video from the NN Conference: Communicating about Sleepiness

by julie on October 27, 2012

I’m excited to release my second narcolepsy awareness video, shot at the 2012 Narcolepsy Network (NN) Annual Conference in Cleveland, OH. Thank you for all those who attended my sessions!

In this video, I re-cap my conference experience and offer a few strategies for communicating about the excessive daytime sleepiness (EDS) of narcolepsy.  Watch below or on Youtube.

Thanks for watching and please come again for more videos soon. I’m forever indebted to the amazing Alex Withrow for his incredible video production. 

Watch All
Watch Video #5: Communicating about Cataplexy
Watch Video #4: What is Cataplexy?

Watch Video #3: Communicating Invisible Symptoms
Watch Video #1: Introduction to Narcolepsy 

{ 10 comments… read them below or add one }

Stephanie Suttle October 27, 2012 at 9:00 pm

Julie, another wonderful job!!! Thanks for your support and the wonderful work you do every day for us PWNs!!!


julie October 29, 2012 at 12:14 am

Thank you so much for checking out my narcolepsy video, Stephanie! Your support means so much to me. Big smiles, Julie


Debra LaValley October 28, 2012 at 12:28 am

Great job, Julie! Have a great day!


julie November 8, 2012 at 9:10 pm

Thank you so much, Debbie!


Alex Withrow October 29, 2012 at 2:50 pm

I’m glad you’re liking how the videos are turning out. Production value isn’t the half of it though. It’s all about your dedication and effort! So glad we get to work on these vids together.


julie October 29, 2012 at 10:53 pm

Alex, your willingness to give your time and skills to create these narcolepsy awareness videos is such a huge gift to me and our community. I am forever thankful!!


Garey Wheatley October 29, 2012 at 7:20 pm

I’m brand new here and I already learned something from your video. I do not get what I would consider a good nights sleep which confused me. I just naturally assumed that with my narcolepsy I should be sleeping excessively over night, which caused me to question the degree of my illness. You cleared that for me.
Thank you,
Garey Wheatley


julie November 8, 2012 at 9:11 pm

Hi Garey,
I’m so thrilled you’ve found my website and that you found this video helpful! Hang in there and thanks for reading,


Keith Rubenstein November 6, 2012 at 3:57 am


Thank you once again! This was an excellent description of how I feel each day. Ill begin using the “100 x” more sleepy. I never say tired, fatigued etc. It is only sleepy as at any second we could fall right asleep.
Keep up the great work.



julie November 6, 2012 at 4:02 am

Thank you so much for watching my narcolepsy awareness video, Keith! So glad you like my tips on communicating about sleepiness of narcolepsy. Many thanks and big smiles, Julie


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