What Is Narcolepsy?

What does NARCOLEPSY: NOT ALONE mean to you?

by julie on August 27, 2014

Narcolepsy- Not Alone

What resonates with you? I created this word-collage using popular words from NARCOLEPSY: NOT ALONE campaign blog posts. For me, the words “connect”, “badass” and “tears” stand out. I love that positive and negative experiences are captured here. No matter where you are on your journey, your feelings are valid and normal, its all part of  the narcolepsy roller-coaster. […]

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Launching Project Sleep’s New Website

by julie on August 22, 2014

PROJECT SLEEP NEW WEBSITE SLEEP HEALTH SLEEP DISORDERS AWARENESS CAMPAING EVENT SLEEP NON PROFIT ORGANIZATION

This week, we launched Project Sleep’s new website! We’ve created a bright site to match our vision for a brighter future. This will be our launching pad to showcase and expand our efforts.  A few fun pages to explore: “How I Am Curing My Sleep Disorder” Guest Post by Stacy Simera Host a NARCOLEPSY: NOT ALONE event! SLEEP WALK TAMPA […]

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huffpost healthy living narcolepsy julie flygare i'm not looking to be saved from narcolepsy author project sleep

Check out my provocative HuffPost article: “I’m Not Looking To Be Saved”! It’s a dream come true to write on HuffPost, adapting this post from my blog. I can’t wait to raise more awareness via this popular website. Please like and share. Also, check out “Tweeting My Way Through Narcolepsy” on HuffPost by the amazing […]

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narcolepsy retraction does not undermine the fundamental hypothesis of narcolepsy as autoimmune disorder dr thomas scammall dr mignot stanford

Recently, Science reported that Science Translational Medicine (STM), retracted an important study in their December 18, 2013 journal by Dr. Emmanuel Mignot of Stanford that explained the first steps in our understanding of narcolepsy as an autoimmune disorder. In his study, Dr. Mignot had found that T cells were primed to attack hypocretin. Hypocretin are the brain […]

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Happy 1st Birthday, NARCOLEPSY: NOT ALONE!

by julie on July 24, 2014

narcolepsy not alone giveaway narcolepsy infographic wide awake and dreaming memoir julie flygare project sleep

On July 24, 2013, I launched the NARCOLEPSY: NOT ALONE campaign, unsure if anyone would join me. One year later, I can hardly believe the positive energy and enthusiasm supporting the campaign around the world. You’ve touched my heart beyond words, bringing countless smiles to my face and also tears of connection and joy. As […]

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narcolepsy advertisement public service announcement julie flygare narcoleptic cataplexy wide awake and dreaming author project sleep founder julie flygare

EXCITING UPDATE: Honda will create a 30-second Narcolepsy Awareness Public Service Announcement (PSA). I am beyond honored to serve as the spokesperson/talent in PSA and I’m currently working with Honda’s ad agency to develop the content.  This is an incredible turn-of-events in our inspiring community initiative thanks to each and every person who signed the petition and raised your voice. Big thanks to […]

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narcolepsy struggle stay awake narcolepsy not alone campaign project sleep julie flygare guest post nikki

NIKKI’S GUEST POST: Today was a drug holiday… Enough said. It’s always weird to take one for me. I always forget what it’s like. I don’t want to think about how many naps I had and the things I had hoped to get done. It’s interesting how some people see a nap as a treat […]

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narcolepsy not alone narcolepsy awareness campaign worcester news uk article apirl scarlett lee julie flygare project sleep awareness

“Despite dealing with the nightmares caused by her condition, April Scarlett Lee’s cartoons have gone global as part of Project Sleep!” April-Scarlett Lee’s narcolepsy journey and the NARCOLEPSY: NOT ALONE campaign are featured in the news this week! Read “Tackling Narcolepsy” by Lydia Johnson, Worcester News, July 7, 2014 [PDF]. I’m so proud to call […]

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Narcolepsy – Am I Sick or Healthy?

by julie on June 29, 2014

Julie Flygare REMRunner narcolepsy spokesperson author wide awake and dreaming narcolepsy memoir narcoleptic project sleep health sleepiness runner inspiring narcolepsy advocate

If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest […]

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Julie Flygare Narcolepsy Not Alone Honda Ad Pulled Apology Issued to Narcolepsy Community We did it

WE DID IT! Thank you for supporting the petition asking Honda to remove the inaccurate “Synth and Seattleites” ad stating people with narcolepsy shouldn’t drive and to dedicate resources toward truthful awareness. We collected over 2,100 signatures in 36 hours! Late last night, we saw our first sign of response. The ad’s YouTube video (http://youtu.be/rC-zopOGVOI) became PRIVATE so […]

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