What Is Narcolepsy?

15073345_1115274855256446_5132575224578665903_n

This fall, I was BUSY spreading narcolepsy awareness to doctors, medical students and researchers across the country. Upon returning from Italy, I started back at my full-time job in pancreatic cancer advocacy first thing the next morning. The following evening, I traveled to UCLA Medical School to give my narcolepsy presentation for first-year medical students […]

{ 0 comments }

A Message to the Narcolepsy Community in Italy!

by julie on November 14, 2016

narcolepsy-wide-awake-and-dreaming-memoir-julie-flygare-italy

REMRunner’s Note: This post is in Italian for the amazing friends I met during my recent trip to Bologna. To read about my trip in English, check out part I and part II.  Ciao amici, Grazie per avermi accolto nel vostro paese. E’ stato così meraviglioso incontrarvi e passare la giornata con voi al 20° anniversario dell’AIN (Associazione […]

{ 0 comments }

Raising Narcolepsy Awareness in Italy!

by julie on November 13, 2016

julie-flygare-narcolepsy-not-alone-presentation-italy-association-for-narcolepsy-hypersomnia

On Saturday Sept. 24, 2016, I stood outside the fancy lecture hall at the University of Bologna in Italy, fidgeting with nerves. I picked up my headset for the “live translation” system that would be my lifeline for the day. Traveling to Italy to speak at the 20th Anniversary of AIN (Associazione Italiana Narcolettici e […]

{ 1 comment }

julie-flygare-out-of-spoons-in-italy

I felt a scratch in my throat at Stanford’s Medicine X conference.  Flying to Italy, pressure spread across my forehead. Waking early the next morning in Bologna, a breeze swirled in through my open hotel window. I smiled and then I coughed… And coughed… And coughed. It was official. I was sick. In Italy.   How could […]

{ 5 comments }

Narcolepsy Advocate in Neurology Now Magazine

by julie on October 12, 2016

screen-shot-2016-10-10-at-8-42-37-pm

Hot off the presses! I’m proud to be featured in Neurology Now’s article, Self Diagnose Successfully, on becoming an empowered and informed patient. I love Neurology Now magazine but narcolepsy isn’t included much, so I am thrilled to help raise some narcolepsy awareness with this neurology audience. Also, it’s super cool that my MedX friend, Matthew Might is […]

{ 1 comment }

Health Further Conference 2016 Flygare Narcolepsy 6

Wow, the last month has been one of the busiest of my life, but all great stuff (as I try to remind myself when I feel overwhelmed). Now, it’s time to catch you up on what’s been happening! Once I heard about the possibility of speaking at Health:Further on August 24 to over 1,000 healthcare professionals in Nashville, […]

{ 1 comment }

the big thing phyllis korkki narcolepsy memoir julie flygare

I’m SO honored that New York Times writer and editor, Phyllis Korkki features my story in her new book The Big Thing: How to Complete Your Creative Project Even If You’re a Lazy, Self-Doubting Procrastinator Like Me, published by Harper on August 9, 2016. Never in a million years did I imagine that Wide Awake and Dreaming would be featured […]

{ 4 comments }

Screen Shot 2016-08-13 at 12.10.48 PM

I received the following comment on my recent blog post and wanted to respond here. ************ Dear N. Leptic, Thank you for taking an interest in learning more about my experience with narcolepsy. First of all, I am so sorry to hear about your challenging experience with narcolepsy. It sounds like you are facing some very real and significant […]

{ 17 comments }

SLEEP16_fb_ad-3-1

This Monday, August 8, my presentation, “I Have Narcolepsy. Do You?” will air to tens of thousands of online viewers as part of the Sleep Success Summit. Register for free today. The Sleep Success Summit is a free online event (August 8-15), featuring over 30 experts discussing a wide range of sleep health and sleep disorder topics. With tens of thousands of viewers expected […]

{ 1 comment }

rising-voices-colour

This month, Project Sleep announced Rising Voices of Narcolepsy ℠, a leadership training program to help people with narcolepsy effectively share their stories through public speaking and writing with local communities, healthcare providers, news outlets, blogs and beyond. On a personal note, this is a huge dream come true for me. It’s such a joy to use my seven years of experience […]

{ 1 comment }