A Moment I’ll Cherish Forever: Meeting my Representative Adam Schiff

On Tuesday, Feb. 10th, I had the opportunity to meet my Representative, Congressman Adam Schiff and thank him in-person for championing the sleep community priorities in Congress for the past three years. I was in Washington, DC for Project Sleep and the Sleep Research Society’s February Hill Day on Monday, Feb. 9th. See our event…

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Sleep Advocacy & Narcolepsy Awareness in Washington DC

“One day you finally knew what you had to do, and began…” — Mary Oliver, The Journey Ten years ago, I ended my silence. I started writing a memoir about narcolepsy and moved to DC to begin advocating. The last decade has been a whirlwind, the lowest of lows and highest of highs, and all…

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Today: Please Ask Your Representative to Co-Sign Narcolepsy Research Letter

Hi friends! I’m so excited to share an amazing opportunity to support critical narcolepsy research THIS WEEK! My Representative, Congressman Schiff of California, is preparing to send a letter to NIH inquiring on the current size, scope, and direction of the narcolepsy portfolio (See Letters). This letter will encourage NIH to support the full spectrum of narcolepsy…

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Sleep Health & Safety, Congressional Briefing April 10, 2014

On Thursday April 10, 2014 at 12 noon, the Sleep Research Society (SRS) and the American Academy for Sleep Medicine (AASM) will be hosting an insightful congressional briefing on sleep health and safety in  B-340 RAYBURN HOUSE OFFICE BUILDING. Congressman Mike Honda (D-CA-17) will also be making remarks at this Congressional briefing. SRS leadership will speak…

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REM Runner’s Top 9 Inspiring Female Health Advocates Part I

In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams.  These women are trailblazers – leading the way for other women to optimize their health and triumph over adversity. Here are the first three: 1. Kathrine Switzer, First Woman to Enter the Boston Marathon Less than 50…

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Sign White House Sleep Petition Today!

Please join me in signing the Official White House Sleep Disorder and Sleep Health Awareness Petition! The petition poignantly states:“We petition the Obama administration to recognize the serious impact that sleep disorders have on life, help raise awareness of sleep disorders, promote sleep health for all ages, and to encourage naps over harmful energy drinks for…

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Julie Flygare Represents Narcolepsy at FDA

On Wednesday, Feb. 27, 2013, I attended an update meeting on FDA’s Patient Focused Drug Development Initiative. Last fall, I led the campaign urging FDA to include narcolepsy in this 20 disease innovative program (read more here). I testified at the FDA hearing and hundreds of narcolepsy advocates sent in comments of support. FDA received…

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Narcolepsy in the Classroom – Web Broadcast Event

Families of children and teens with narcolepsy are invited to attend this special event on Saturday February 9th from 2-4 p.m. (EST) at Children’s National Medical Center in Washington D.C.  LIVE INTERNATIONAL BROADCAST: You are invited to participate in a live internet broadcast as experts speak on “Narcolepsy in the Classroom” on Saturday Feb 9, 2013 from…

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