Washington DC

sleep health congressional briefing april 10 2014

On Thursday April 10, 2014 at 12 noon, the Sleep Research Society (SRS) and the American Academy for Sleep Medicine (AASM) will be hosting an insightful congressional briefing on sleep health and safety in  B-340 RAYBURN HOUSE OFFICE BUILDING. Congressman Mike Honda (D-CA-17) will also be making remarks at this Congressional briefing. SRS leadership will speak […]

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rem runners top 9 inspiring female health advocates day one profile photos

In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams.  These women are trailblazers – leading the way for other women to optimize their health and triumph over adversity. Here are the first three: 1. Kathrine Switzer, First Woman to Enter the Boston Marathon Less than 50 […]

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Sign White House Sleep Petition Today!

by julie on March 12, 2013

White House Sleep Petition Sign Now Sleep Disorder Sleep Health Narcolepsy Julie Flygare Square

Please join me in signing the Official White House Sleep Disorder and Sleep Health Awareness Petition! The petition poignantly states:”We petition the Obama administration to recognize the serious impact that sleep disorders have on life, help raise awareness of sleep disorders, promote sleep health for all ages, and to encourage naps over harmful energy drinks for […]

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Julie Flygare Represents Narcolepsy at FDA

by julie on March 3, 2013

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On Wednesday, Feb. 27, 2013, I attended an update meeting on FDA’s Patient Focused Drug Development Initiative. Last fall, I led the campaign urging FDA to include narcolepsy in this 20 disease innovative program (read more here). I testified at the FDA hearing and hundreds of narcolepsy advocates sent in comments of support. FDA received […]

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My favorite time of the year is quickly approaching – Sleep Walk time!! Over 120 participants are registered for the National Sleep Walk in Washington DC on Sunday March 3, 2013 at 10:00 a.m. Participants will meet at the Lincoln Memorial Reflecting Pool Steps to raise awareness about sleep disorders and healthy sleep for all […]

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Families of children and teens with narcolepsy are invited to attend this special event on Saturday February 9th from 2-4 p.m. (EST) at Children’s National Medical Center in Washington D.C.  LIVE INTERNATIONAL BROADCAST: You are invited to participate in a live internet broadcast as experts speak on “Narcolepsy in the Classroom” on Saturday Feb 9, 2013 from […]

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In honor of National Sleep Awareness Week, join me for the 3rd Annual National Sleep Walk in Washington DC! Celebrating sleep health & sleep disorder awareness When: Sunday March 3, 2013 at 10:00 a.m.
Where: Lincoln Memorial Reflecting Pool Steps,
 National Mall, Washington DC (view google map)
Who: Free for all who register online. (First 100 registrants receive t-shirt!)
What to bring: Walking shoes & […]

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Has your child or teen been diagnosed with narcolepsy? You and your family are not alone! Next Saturday, my amazing Washington DC support group is hosting a get-together for young adults and families with narcolepsy. Families, caregivers and friends come together for an informative afternoon. Teens and young adults with narcolepsy are also encouraged to attend […]

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