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Tonight, I took on the ALS Ice Bucket Challenge. I was excited to participate in this viral awareness and fundraising campaign, as my Uncle Bill died of ALS and his courage inspires me every day as a narcolepsy advocate. I got the idea of taking the Ice Bucket Challenge in the scenic Griffith Park, during one […]

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Project Sleep Intro Video New Logo Unveil Sleep Awareness Sleep Disorders Julie Flygare Founder

As founder of Project Sleep, I’m thrilled to unveil our beautiful new logo in this introductory video: Thank you for celebrating this exciting step forward with Project Sleep! Our new website is on its way soon along with other announcements and events. A big thank you to Alex Withrow for his amazing photography and video production.  Please […]

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Narcolepsy on The Doctors Show

by julie on May 21, 2014

The Doctors Show Narcolepsy Narcoleptic Sleep Disorder Sleepy Julie Flygare Narcolepsy Blog Wide Awake and Dreaming Memoir Narcolepsy Spokesperson

On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate, […]

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Narcolepsy Not Alone Narcolepsy Awareness Campaign Julie Flygare Valencia Blake NBC News WRCB tv Chattanooga The Doctors Show Narcolepsy Blog Awareness

NARCOLEPSY: NOT ALONE is on the news! I’m thrilled to share that NBC News Channel 3 WRCB in Chattanooga, TN featured the NNA campaign in a terrific segment with my friend and fellow advocate, Valencia Blake. WATCH HERE. The segment beautifully describes the NARCOLEPSY: NOT ALONE campaign as a nationwide effort to reach people with […]

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NARCOLEPSY: NOT ALONE on the news? It’s true! NBC News Channel 2 KTUU in Alaska recently featured the campaign in a fantastic story about my friend and fellow advocate, Heather. WATCH HERE. Interestingly, the NARCOLEPSY: NOT ALONE campaign helped pave the way for this story. About a month ago, Heather worked hard to coordinate an amazing campaign […]

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 Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!

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narcolepsy event julie flygare narcolepsy spokesperson suddenly sleepy saturday march 8 2014 national sleep awareness week

Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below […]

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Official NARCOLEPSY: NOT ALONE T-shirts!

by julie on January 7, 2014

Julie Flygare Narcolepsy Not Alone 3

The official NARCOLEPSY: NOT ALONE t-shirts are here! Raise awareness about narcolepsy while also supporting a good cause. Proceeds support Project Sleep, my new non-profit raising awareness about sleep health and sleep disorders. Purchase by Jan. 26, 2014. View/Order T-Shirts – Available in three styles: men’s/unisex, women’s fit and youth sizes – ONLY for sale […]

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Five months ago today, I launched the NARCOLEPSY: NOT ALONE campaign. I’m so excited to share this worldwide video update: Creating this video brought tears to my eyes – we had to stop filming momentarily so I could regain my composure. Thank you for standing tall and proud with me – helping to prove that […]

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Random Remmie Explains Narcolepsy & Sleep Cycle

by julie on September 19, 2013

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“Narcolepsy explained so simply a caveman could understand it.”   You may remember Random Remmie from this previous post, but recently she’s became a movie star, featured in two amazing educaitonal videos. The purpose of these videos is to explain narcolepsy to classmates of children with narcolepsy so they can better understand. Please take a […]

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