Video

Filming the Honda Narcolepsy PSA

by julie on October 24, 2014

narcolepsy spokesperson julie flygare youre not alone with narcolepsy project sleep honda rpa narcolepsy psa narcolepsy commercial narcolepsy advertisement sleepiness cataplexy filming 8

Over the past few months, I’ve worked with Honda and a Honda agency, RPA, to create a narcolepsy public service announcement (PSA). I’m so proud and honored to have served as a real face and voice of narcolepsy for this project. In preparation, I shared my memoir, fact sheets, patient experience and key awareness points. It […]

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Viral Narcolepsy with Cataplexy Video

by julie on October 22, 2014

narcolepsy cataplexy

A video of a young woman with narcolepsy and cataplexy has gone viral. Watch below or on YouTube. This is a powerful video and I am grateful to Sarah Elizabeth for bravely sharing her experience! Sarah Elizabeth is primarily experiencing a narcolepsy symptom called cataplexy here. Cataplexy is a sudden loss of muscle tone, resulting in […]

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Watch: Disruptive Innovations Interview on Narcolepsy, FDA & Project Sleep

I’m thrilled to share my Disruptive Innovations interview with the Conference Forum’s Exec. Director, Valerie Bowling. This fun discussion on narcolepsy, FDA and Project Sleep was filmed before my speech at the TCF’s Disruptive Innovations Conference in Boston, MA on Sept. 11, 2014. Thank you so much to Valerie and the Conference Forum’s team for […]

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Tonight, I took on the ALS Ice Bucket Challenge. I was excited to participate in this viral awareness and fundraising campaign, as my Uncle Bill died of ALS and his courage inspires me every day as a narcolepsy advocate. I got the idea of taking the Ice Bucket Challenge in the scenic Griffith Park, during one […]

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Project Sleep Intro Video New Logo Unveil Sleep Awareness Sleep Disorders Julie Flygare Founder

As founder of Project Sleep, I’m thrilled to unveil our beautiful new logo in this introductory video: Thank you for celebrating this exciting step forward with Project Sleep! Our new website is on its way soon along with other announcements and events. A big thank you to Alex Withrow for his amazing photography and video production.  Please […]

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Narcolepsy on The Doctors Show

by julie on May 21, 2014

The Doctors Show Narcolepsy Narcoleptic Sleep Disorder Sleepy Julie Flygare Narcolepsy Blog Wide Awake and Dreaming Memoir Narcolepsy Spokesperson

On Thursday, May 22, 2014, narcolepsy will be featured on The Doctors Show. Please check for local listings here. As a narcolepsy spokesperson and author of Wide Awake and Dreaming: A Memoir of Narcolepsy, I’m so thrilled that the Doctors Show will highlight narcolepsy on TV. Thank you to my brave and beautiful friend and co-advocate, […]

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Narcolepsy Not Alone Narcolepsy Awareness Campaign Julie Flygare Valencia Blake NBC News WRCB tv Chattanooga The Doctors Show Narcolepsy Blog Awareness

NARCOLEPSY: NOT ALONE is on the news! I’m thrilled to share that NBC News Channel 3 WRCB in Chattanooga, TN featured the NNA campaign in a terrific segment with my friend and fellow advocate, Valencia Blake. WATCH HERE. The segment beautifully describes the NARCOLEPSY: NOT ALONE campaign as a nationwide effort to reach people with […]

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NARCOLEPSY: NOT ALONE on the news? It’s true! NBC News Channel 2 KTUU in Alaska recently featured the campaign in a fantastic story about my friend and fellow advocate, Heather. WATCH HERE. Interestingly, the NARCOLEPSY: NOT ALONE campaign helped pave the way for this story. About a month ago, Heather worked hard to coordinate an amazing campaign […]

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 Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!

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narcolepsy event julie flygare narcolepsy spokesperson suddenly sleepy saturday march 8 2014 national sleep awareness week

Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below […]

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