Support System

While crossing the finish line of the San Diego Rock n Roll Marathon was an awesome moment, my biggest prize came yesterday when Project Sleep gave out TEN scholarships to students with narcolepsy through the Jack & Julie Narcolepsy Scholarship program. Meet the 2015 Jack & Julie Narcolepsy Scholarship Recipients: View Scholarship Awards Announcement View/Download […]

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It seems that Hollywood has a surprisingly large percentage of cases of narcolepsy, a disorder affecting 1 in 2,000 people, about 200,000 Americans and 3 million people worldwide, including many children and young adults. The latest Hollywood victim is Homer Simpson. Word on the street is he going to discover he has narcolepsy in the […]

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Narcolepsy Keynote Speaker in Australia!

by julie on August 11, 2014

Australia, here I come! I’m beyond honored and thrilled to announce that I will be a keynote speaker for the First Patient Conference hosted by Narcolepsy Support Australia on the Gold Coast in Queensland on May 1-3, 2015. Narcolepsy Expert Extraordinaire, Dr. Emmanuel Mignot is the other confirmed keynote speaker! In addition, I will present sessions on […]

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Supporting a Friend With Narcolepsy

by julie on August 8, 2014

If your friend or loved one was diagnosed with narcolepsy, you may wonder the best way show support. You want to help your friend through this difficult time, but it can be hard to know what to say or do. While there are no set rules for supporting a friend with narcolepsy, I hope these […]

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 “You are not a burden. You HAVE a burden, which by definition, is too heavy to carry on your own.” Accepting help can be hard. Here’s how I created a strong support system. Come back soon for more inspirational quotes for those living with chronic invisible conditions like narcolepsy! Inspirational Quote #13:

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This holiday season, I’m excited to offer personalized signed copies of “Wide Awake and Dreaming: A Memoir of Narcolepsy” for a discount rate of $15 a book (plus shipping). Order by Dec. 10 to ensure Christmas delivery Bulk discounts on orders of 10 books or more To place your order, contact me at REMRunner01@gmail.com In […]

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Guest Post: Dear Brave Super Sweet Jennifer

by julie on November 8, 2013

Guest post by Jennifer in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here.   ————-   Dear Brave, Super Sweet Jennifer,   Your journey with Narcolepsy includes some super seriously hard issues like, harmful feelings of seclusion, the effects of isolation, crying yourself to sleep, being constantly misunderstood, questioning your […]

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Guest Post: Dear Katie

by julie on November 4, 2013

Guest post by Katie in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ——– Dear Katie, First of all, that jaw drop of yours was hilarious!  I know you’re conditioned to hear “I don’t know” if the letters “D” and “r” come before a name, but realize where you are […]

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Dear Julie

by julie on November 1, 2013

This is my personal response to my “Dear Diagnosis” Blogathon prompt. Read other responses and join us here. ——— Dear Julie, You will be okay. You will be okay. I wish I could reach through time and give you a big hug. I wish I could protect your heart from the pain. It will not go […]

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Narcolepsy Network Conference 2013

by julie on October 30, 2013

On Oct. 18 – 20, I attended the Annual Narcolepsy Network Conference in Atlanta, GA, where I led four sessions along with selling and signing books. It was a whirlwind weekend – catching up with old friends and meeting new friends. The conference had a fantastic line-up of narcolepsy researchers and clinicians. These doctors were […]

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