Photography by Tony Wyatt “Knowing that I have the support of such wonderful people gives me strength I never thought I would have.” -Bridgette Snyder REM Runnner’s Note: Aloha! I had the honor of working with Bridgette to start the first Sleep Walk in Waikiki. It’s my dream to host Sleep Walks all over America. I asked Bridgette to […]


Hurray for Suddenly Sleepy Saturday March 9, 2013 – Narcolepsy Awareness Day! I’m celebrating with free books and sleep walks across the USA: Share my book for FREE with friends: FREE E-Book Download Day: March 9, 2013 (12:00am -11:59pm PST). Don’t have a Kindle? No problem. Free Kindle apps for various computers, phones & tablets. […]


On the same steps where Martin Luther King, Jr. gave his “I Have A Dream” speech, over 125 participants gathered last Sunday (March 3, 2013) to share their dream for America to get a good night’s sleep. The third annual National Sleep Walk brought together doctors, organization leaders, patients and sleep supporters from as far away as […]


Alright DALLAS, let’s cowboy up and go sleep walking on Saturday March 9, 2013 at 11:00 a.m (CT). Meet me in the lobby of the Hyatt Regency Dallas Hotel. Together, we will walk from the hotel to Dallas City Hall Plaza and back (about 2 miles total). Please RSVP by sending me a message via my contact […]


My favorite time of the year is quickly approaching – Sleep Walk time!! Over 120 participants are registered for the National Sleep Walk in Washington DC on Sunday March 3, 2013 at 10:00 a.m. Participants will meet at the Lincoln Memorial Reflecting Pool Steps to raise awareness about sleep disorders and healthy sleep for all […]


Families of children and teens with narcolepsy are invited to attend this special event on Saturday February 9th from 2-4 p.m. (EST) at Children’s National Medical Center in Washington D.C.  LIVE INTERNATIONAL BROADCAST: You are invited to participate in a live internet broadcast as experts speak on “Narcolepsy in the Classroom” on Saturday Feb 9, 2013 from […]


In honor of National Sleep Awareness Week, join me for the 3rd Annual National Sleep Walk in Washington DC! Celebrating sleep health & sleep disorder awareness When: Sunday March 3, 2013 at 10:00 a.m.
Where: Lincoln Memorial Reflecting Pool Steps,
 National Mall, Washington DC (view google map)
Who: Free for all who register online. (First 100 registrants receive t-shirt!)
What to bring: Walking shoes & […]


The Summer 2012 edition of Community Magazine is out and hotter than ever! I really enjoyed writing the cover story and working with Caring Voice Coalition’s team – they are passionate about patients! Check out my feature narcolepsy article, “In Sickness and In Health” pg. 16-19:  [issuu width=420 height=272 backgroundColor=%23222222 documentId=120627200108-e7727450584c4c56af6093c6d21d4463 name=cvc_summer2012 username=rocketpop tag=cvc unit=px v=2] […]


SLEEP WALK 2012 Video

by julie on March 19, 2012

Yes, we got our groove on during SLEEP WALK 2012! Check it out: Thank you, Ethan Crawford for creating this awesome video! Thank you, Suzworks’ Suzannah Weiss and Sue Dambrauskas for getting the party started with Nia. More fun videos here. More about Wake Up Narcolepsy here.


When Dreams Come True – SLEEP WALK 2012

by julie on March 12, 2012

    The week of SLEEP WALK 2012, I checked the weather obsessively like a bridezilla awaiting her wedding day.  Hosting a “rain or shine” event outdoors in March is precarious. It could snow; it could be summer. Arriving at the National Mall early Saturday morning – the sun was shining brightly, not a cloud in […]