A Narco’s Tale: A Poem by Maureen Caden

I was diagnosed in 2003  and like many of us went through many years  with unanswered fears. I knew I was not lazy  as some days became rather hazy.  I would will myself to stay awake  I didn’t even have time to bake a cake.  For sleep time would come  This thing had me under…

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Julie Flygare Publishes Huff Post Narcolepsy Article

Check out my Huff Post article, “Stanford’s Research Provides Hope for Patients With Narcolepsy.”  This is a dream come true for me! Arianna Huffington’s commitment to sleep is a huge inspiration to me. Thank you to the Stanford Sleep Blog for sharing my story. 

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Narcolepsy Videos Featured on EmpowHER

Recently, I shared my story of narcolepsy with renowned women’s health advocate and EmpowHER founder, Michelle King Robson. EmpowHER is an award-winning social health company for women, providing visitors access to one of the largest women’s health and wellness content libraries on the web, as well as the largest online community of women discussing their…

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Discovery Channel Narcolepsy Video

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…

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Narcolepsy on Discovery Channel Featuring Julie Flygare

This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST).  It was an honor to work…

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Julie Flygare Writes Cover Narcolepsy Story for Caring Voice Coalition’ Community Magazine

The Summer 2012 edition of Community Magazine is out and hotter than ever! I really enjoyed writing the cover story and working with Caring Voice Coalition’s team – they are passionate about patients! Check out my feature narcolepsy article, “In Sickness and In Health” pg. 16-19:  [issuu width=420 height=272 backgroundColor=%23222222 documentId=120627200108-e7727450584c4c56af6093c6d21d4463 name=cvc_summer2012 username=rocketpop tag=cvc unit=px v=2]…

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Wide Awake and Dreaming

With 16 days until the Marathon, I’ve decided to discuss an aspect of narcolepsy I’ve never discussed here on this blog.  One evening in June of 2007, while sleeping overnight at my dad’s house, I awoke in the middle of the night to the repeated ringing of the doorbell.  Hours earlier, I’d fallen asleep on…

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