Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!
In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy: 10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious [...]
Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below [...]
Darkness fallsSleep eventually tooSandman fails to allow deep slumberLike he allows for you My body is exhausted And it cannot keep onIt shuts itself downUnfortunately not for long In your eyes I appear to restBut here, where I amIt’s such a mess Shhhhh I hear him comingCircling through my house Walking room to roomI remain quiet as [...]
I’m so excited to release my narcolepsy infographic! This is the FIRST infographic dedicated to raising awareness about narcolepsy. Please share! Unveiling Narcolepsy Infographic Video: Narcolepsy Infographic: Thank you to my amazing graphic designer, Anthony Nesossis. Thank you to Alex Withrow for his pro video production! Read about the making of the infographic here. I made [...]
I was diagnosed in 2003 and like many of us went through many years with unanswered fears. I knew I was not lazy as some days became rather hazy. I would will myself to stay awake I didn’t even have time to bake a cake. For sleep time would come This thing had me under [...]
Check out my Huff Post article, “Stanford’s Research Provides Hope for Patients With Narcolepsy.” This is a dream come true for me! Arianna Huffington’s commitment to sleep is a huge inspiration to me. Thank you to the Stanford Sleep Blog for sharing my story.
Recently, I shared my story of narcolepsy with renowned women’s health advocate and EmpowHER founder, Michelle King Robson. EmpowHER is an award-winning social health company for women, providing visitors access to one of the largest women’s health and wellness content libraries on the web, as well as the largest online community of women discussing their [...]
Recently, I was a guest on Forward Motion with Karen Allyn (MCM Channel 21). Re-cap and fun photos here. The video is now online! Watch here or on YouTube. Thank you for checking out my interview! Big thanks to Karen Allyn and the Forward Motion team.
I’m thrilled to release my latest video exploring hypnagogic hallucinations and sleep paralysis – two symptoms of narcolepsy. Thanks for watching, come back soon for more. Big thanks to Alex Withrow for giving his time and pro video production skills to make this possible! Watch All on YouTube Watch Video #9: Why I Wrote a [...]