Sleep Disorder

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Don’t miss this highly captivating post Becoming a Doctor with Narcolepsy, now published on Project Sleep’s website. The author is a third year medical student diagnosed with narcolepsy a year and a half ago, after suffering symptoms since age 15. In this moving reflection, the medical student contemplates a tough decision: whether or not to disclose her diagnosis […]

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wide awake and dreaming page 149

Writing for me is time-traveling. On January 16, 2012, I sipped a steaming hot soy latte at my favorite coffee shop in Arlington, Virginia, cued up the classical piano in my headphones and closed my eyes. Here we go!  On this day, my time-traveling destination was a hotel room in Albany, New York – four years earlier. The subject […]

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Narcolepsy ePatient Medicine X Julie Flygare Video

I’m thrilled to share my 5-minute Ignite! Talk from Stanford Medicine X 2015. Please share with friends and family to raise narcolepsy awareness (https://youtu.be/MXTd8xd_f8s). In this video, I describe my journey with narcolepsy from people laughing in my face to living proudly and creating the NARCOLEPSY: NOT ALONE campaign. I emphasize how feeling “misunderstood and alone” with […]

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Narcolepsy Narcolepsy Narcolepsy Julie Flygare MedX speech

REM Runner’s Note: On Sept. 24, 2015, I had the huge honor of stepping on the MedX main stage at Stanford Medical School to give an ePatient Ignite Talk. This is (more-or-less) what I said:  ************ Diagnosed with narcolepsy at age 24, I was excited to tell my friends and family. Finally! I had legitimate medical terms […]

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warning medx may expand your mind stanford medicine x conference

Goosebumps raised on my arms as we shuffled into the fake hospital exam room at Stanford Medical School. I hate hospital exam rooms, even fake ones apparently! About twenty of us lined the walls to watch two simulation exercises. Patient wears doctor’s white coat: In the first simulation, a real-life patient played a “doctor”, wearing a […]

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homer simpson narcolepsy not alone

When the Simpsons premieres tonight at 8pm ET/PT,  Homer will get “narcolepsy”. I’m thrilled to report that Executive Producer, Al Jean tweeted me: “The episode was modified somewhat after I read the extremely compelling article you wrote. Not sure you will be 100% happy…” Thank you, Al Jean and the Simpsons  for thoughtfully reading and modifying […]

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suffering the silence social media campaign narcolepsy not alone julie flygare patient x

Living in Silence: Eight years ago today, on Sept. 18, 2007, I was diagnosed with narcolepsy with cataplexy, a serious chronic neurological disorder of the sleep/wake cycle. I told friends and family right away. Finally, I had scientific words to describe my mysterious symptoms. But I hated people’s reactions. Some acted as if I’d said […]

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On Sept. 1 – 3, I had the extraordinary opportunity to speak at UCLA Medical school three nights in a row, sharing my inspiring narcolepsy journey with 120 first-year medical students and a dozen faculty members. The first-year students were just days into their medical education – energetic and eager to learn! I spoke as part of the students’ required […]

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Narcolepsy: Not Alone

As a 29-year-old, female journalist and photographer, I am accustomed to the words people use to define me; “Fearless”, “gutsy”, “courageous” are just a few. But, as a woman living with severe narcolepsy, I often struggle to reconcile these one-dimensional characterizations with my own sense of self. That disconnect was recently underscored when I announced […]

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julie flygare narcolepsy hyersomnia conference 2015

Recently, I traveled to Atlanta to speak at the Hypersomnia Conference 2015. The conference featured a great variety of support groups and fantastic presentations by medical leaders, educational experts, patient advocates and a disabilities attorney. Uniquely, the conference also included hypersomnia, narcolepsy and KLS speakers and attendees, so we could share and learn from each […]

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