Sleep Disorder

Launching Project Sleep’s New Website

by julie on August 22, 2014

PROJECT SLEEP NEW WEBSITE SLEEP HEALTH SLEEP DISORDERS AWARENESS CAMPAING EVENT SLEEP NON PROFIT ORGANIZATION

This week, we launched Project Sleep’s new website! We’ve created a bright site to match our vision for a brighter future. This will be our launching pad to showcase and expand our efforts.  A few fun pages to explore: “How I Am Curing My Sleep Disorder” Guest Post by Stacy Simera Host a NARCOLEPSY: NOT ALONE event! SLEEP WALK TAMPA […]

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narcoelpsy not alone julie flygare narcoleptic blog narcolepsy awareness campaign giveaway prize winners

Thank you to everyone who submitted new NARCOLEPSY: NOT ALONE photos during the First Birthday Giveaway Contest! I finally just drew the winners: Rayanne in the UK Kellie in Florida Suzy in Australia Congratulations! I will mail your prize-packs this week with over $60 worth of narcolepsy awareness gear including: 2 new infographic posters (one for you and […]

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huffpost healthy living narcolepsy julie flygare i'm not looking to be saved from narcolepsy author project sleep

Check out my provocative HuffPost article: “I’m Not Looking To Be Saved”! It’s a dream come true to write on HuffPost, adapting this post from my blog. I can’t wait to raise more awareness via this popular website. Please like and share. Also, check out “Tweeting My Way Through Narcolepsy” on HuffPost by the amazing […]

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Narcolepsy Keynote Speaker in Australia!

by julie on August 11, 2014

Narcolepsy Support Australia Patient Conference 2015 Julie Flygare Keynote Speaker

Australia, here I come! I’m beyond honored and thrilled to announce that I will be a keynote speaker for the First Patient Conference hosted by Narcolepsy Support Australia on the Gold Coast in Queensland on May 1-3, 2015. Narcolepsy Expert Extraordinaire, Dr. Emmanuel Mignot is the other confirmed keynote speaker! In addition, I will present sessions on […]

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Supporting a Friend With Narcolepsy

by julie on August 8, 2014

support friend with narcolepsy support child with narcolepsy narcoleptic julie flygare help my friend with narcolepsy support system loved one with narcolepsy how can i help 2

If your friend or loved one was diagnosed with narcolepsy, you may wonder the best way show support. You want to help your friend through this difficult time, but it can be hard to know what to say or do. While there are no set rules for supporting a friend with narcolepsy, I hope these […]

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On Sept. 11, 2014, I will present a TED-style talk at “Disruptive Innovations” in Boston, MA.  My 12-minute speech will discuss: “How a Patient Helped Define a New Clinical Endpoint in Narcolepsy: Diagnosed with narcolepsy with cataplexy in 2007, award-winning author and founder of Project Sleep, Julie Flygare, shares her story on how she helped define a […]

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Join Us! Sleep Walk Tampa Bay

by julie on August 1, 2014

Screen shot 2014-06-27 at 9.24.13 AM

In one month, on Sunday August 31, 2014, we will be walking on the beach to celebrate sleep in St. Pete Beach, FL! Please join myself and local host, Jessica starting at 9:00 a.m. for a 1.5 mile scenic beach walk and sleep spirit contest. Order event t-shirts by August 12, 2014. Join Project Sleep to celebrate […]

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current concepts in sleep julie flygare narcolepsy speaker tradewinds resort st pete beach

I’m honored to be a featured speaker at the upcoming Current Concepts in Sleep Conference in St. Pete Beach, FL on August 29-30, 2014. I will be sharing my inspirational narcolepsy presentation – from collapsing to the ground to becoming a vocal advocate. The Current Concepts in Sleep Conference will take place at the picturesque TradeWinds Resort. The agenda features […]

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Project Sleep 501c3 nonprofit organization sleep health and sleep disorder awareness

Project Sleep is officially a 501(c)(3) tax exempt non-profit organization – which means that all generous donations are now tax-deductible!  My heart jumped out of my chest when I received the news. I read the official IRS determination letter about 20 times to make sure I wasn’t dreaming. I could hardly believe it, my long-time […]

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narcolepsy advertisement public service announcement julie flygare narcoleptic cataplexy wide awake and dreaming author project sleep founder julie flygare

EXCITING UPDATE: Honda will create a 30-second Narcolepsy Awareness Public Service Announcement (PSA). I am beyond honored to serve as the spokesperson/talent in PSA and I’m currently working with Honda’s ad agency to develop the content.  This is an incredible turn-of-events in our inspiring community initiative thanks to each and every person who signed the petition and raised your voice. Big thanks to […]

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