Sleep Disorder

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Grand Rounds is the important educational tradition of doctors and healthcare professionals getting together to learn about evolving areas which may be outside of their core practice. However, patients are rarely invited to participate, so sharing my narcolepsy journey at Nova Southeastern University (NSU)’s Grand Rounds on May 8, 2015 was a HUGE honor. This is why, just 24 hours […]

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DALLAS, will you SLEEP WALK with me?

by julie on May 21, 2015

dallas fort worth sleep walk julie flygare announcement

I’m sooo excited to announce that I’ll be visiting Texas for SLEEP WALK DALLAS FORT WORTH on June 13, 2015. I can’t wait to raise sleep awareness with my DFW friends, plus I hear there’s face painting, prizes and a bounce house, so join us! IMPORTANT: Purchase t-shirt by Sunday, May 24th REGISTRATION: $5 in advance or at […]

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Narcolepsy Podcasts on SleepHub

by julie on May 19, 2015

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During my recent visit to Australia, I got to meet Dr. David Cunnington, a sleep doctor in Melbourne. Last fall, I’d “met” Dr. Cunnington virtually when we were both interviewed on the Daily Edition TV program on narcolepsy. He’s one of those unique sleep doctors who is both knowledgeable about narcolepsy and truly CARES about his […]

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“What could I say that they don’t already know?” This question haunted me in the months, weeks and days leading up to Narcolepsy Support Australia Conference. Over a year ago, when NSG Australia’s leader-extraordinaire, Melissa asked me to be a keynote speaker at their inaugural patient conference, I said “Yes!!!” right away. No question, I wouldn’t miss […]

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Narcolepsy Flyer Julie Flygare NSU CE Event Speaker

I leave for Australia in a few days, where I’ll be a keynote speaker at the Inaugural Narcolepsy Patient Conference hosted by NSG Australia. After returning from Australia, I’ll be taking off for Fort Lauderdale! I’ve been invited to speak at Nova Southeastern University on May 8th for their Grand Rounds and a Continuing Education (CE) […]

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Happy Sleep Week, friends! This National Sleep Awareness Week, I can’t wait for Project Sleep’s first-ever international SLEEP IN (#SLEEPIN2015). On March 6-8, we will be taking to our beds to raise awareness about sleep health and sleep disorders while fundraising for Project Sleep. Let’s make PEACE with SLEEP! Sign up today: www.crowdrise.com/SLEEPIN Full details: www.project-sleep.com/sleepin I truly cannot […]

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sally photobooth cataplexy narcolepsy blog

Four lovely ladies walk into a photo booth, one has narcolepsy with cataplexy, her name is Sally. Something is funny and as Sally laughs, the camera perfectly captures the stages of her cataplexy attack. Sally (top-middle) describes: This was a photo booth at a friend’s wedding that takes a photo every 5 seconds. The three other ladies […]

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Grace Nepal

Please welcome GRACE to the NARCOLEPSY: NOT ALONE campaign, who took this photo at the Everest Base Camp in Nepal. In her inspiring blog post, she describes her journey as a woman with narcolepsy with cataplexy to reach the Everest Base Camp: “On paper you might think that a person with a diagnosis of Narcolepsy attempting to trek to […]

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Running a Marathon for Narcolepsy Scholarship

by julie on February 8, 2015

marathon narcolepsy scholarship julie flygare fundraising

It’s official! I’m training to run the San Diego Rock n’ Roll Marathon on May 31, 2015 to support the Jack & Julie Narcolepsy Scholarship. Please consider supporting in one of two ways: Purchase a NARCOLEPSY: NOT ALONE t-shirt or sweatshirt here. Deadline: Feb. 15. Delivered in time to wear for National Narcolepsy Day/Suddenly Sleepy Saturday March 7, […]

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A Day In The Life… NPR Features Narcolepsy

by julie on February 7, 2015

a day in the life of narcoleptic julie flygare narcolepsy the pulse whyy npr radio

I’m thrilled that NPR station WHYY featured my story of narcolepsy on the radio today. Listen online here: “A Day In The Life of a Narcoleptic” by Steven Jackson. When the reporter for NPR asked to follow me around for 24 hours, I said “YES!” right away. I’m always looking to raise awareness about narcolepsy.  I am […]

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