Sleep Apnea

narcolepsy guest post cherae 5

REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if they’ll have the energy to care for a child. Fair enough. Yet I’ve met many inspiring parents living with narcolepsy. I’m thrilled to share one amazing story […]

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Sign White House Sleep Petition Today!

by julie on March 12, 2013

White House Sleep Petition Sign Now Sleep Disorder Sleep Health Narcolepsy Julie Flygare Square

Please join me in signing the Official White House Sleep Disorder and Sleep Health Awareness Petition! The petition poignantly states:”We petition the Obama administration to recognize the serious impact that sleep disorders have on life, help raise awareness of sleep disorders, promote sleep health for all ages, and to encourage naps over harmful energy drinks for […]

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The Huffington Post reported that today is National Napping Day (as established in 1999 by a Boston University professor William Anthony, Ph.D., and his wife, Camille Anthony).  “Our goal is to encourage folks to take a nap wherever they may be, at home, at the workplace or on vacation, and to make it a regular part of their healthy lifestyle,” Anthony said […]

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National Sleep Awareness Week Foster Congressional Record

Please join me in thanking Congressman Bill Foster (D-IL) for his efforts in recognizing National Sleep Awareness Week, March 3rd – 10th, 2013. Congressman Foster submitted statements for the Congressional Record, which called on his fellow colleagues to join him in recognizing National Sleep Awareness Week and to support the Sleep community by raising awareness […]

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The 36th meeting of the Sleep Disorder Research Advisory Board (SDRAB) took place on Feb. 25 – 26, 2013 on the National Institutes of Health (NIH) Campus in Bethesda, MD. The current Board is comprised of five sleep researchers and four patient representatives, including yours truly, the REM Runner! Ad-hoc participants include Michael Twery, Ph.D., […]

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Congressional_Briefing_Sleep_Research_Narcolepsy_Julie_Flygare

Room S115 of the U.S. Capitol quickly filled to capacity on Thursday May 31st at 2pm. It was a packed house with standing room only for the Congressional Briefing on the NIH Sleep Disorders Research Plan. Congressional staffers, patient advocates and sleep researchers were all in attendance.  The prestigous presenters outlined the significant health and […]

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On May 31, 2012, a Congressional Briefing of the 2011 NIH Sleep Disorders Research Plan will take place at 2 p.m. in the U.S. Capitol Building. The Sleep Research Society in conjunction with Congressman Michael Honda organized this event. The Congressional Briefing is open to the public. Patients and interested parties are encouraged to attend. Details below. The […]

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SLEEP WALK 2012 Video

by julie on March 19, 2012

SLEEP WALK 2012 Video

Yes, we got our groove on during SLEEP WALK 2012! Check it out: Thank you, Ethan Crawford for creating this awesome video! Thank you, Suzworks’ Suzannah Weiss and Sue Dambrauskas for getting the party started with Nia. More fun videos here. More about Wake Up Narcolepsy here.

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When Dreams Come True – SLEEP WALK 2012

by julie on March 12, 2012

    The week of SLEEP WALK 2012, I checked the weather obsessively like a bridezilla awaiting her wedding day.  Hosting a “rain or shine” event outdoors in March is precarious. It could snow; it could be summer. Arriving at the National Mall early Saturday morning – the sun was shining brightly, not a cloud in […]

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Grab your glitter glue, bedazzlers, ribbons, and stickers – it’s time to make creative sleep/dream themed signage for the second annual SLEEP WALK (Saturday March 10, 2012 at 9am on the National Mall). My close friend and Nia instructor Sue hosted an informal sign-making party this past Sunday with myself, Sze-Ping and Kerry. It was […]

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