Running a Marathon for Narcolepsy Scholarship

It’s official! I’m training to run the San Diego Rock n’ Roll Marathon on May 31, 2015 to support the Jack & Julie Narcolepsy Scholarship. Please consider supporting in one of two ways: Purchase a NARCOLEPSY: NOT ALONE t-shirt or sweatshirt here. Deadline: Feb. 15. Delivered in time to wear for National Narcolepsy Day/Suddenly Sleepy Saturday March 7,…

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A Day In The Life… NPR Features Narcolepsy

I’m thrilled that NPR station WHYY featured my story of narcolepsy on the radio today. Listen online here: “A Day In The Life of a Narcoleptic” by Steven Jackson. When the reporter for NPR asked to follow me around for 24 hours, I said “YES!” right away. I’m always looking to raise awareness about narcolepsy.  I am…

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Putting the RUNNER back in REM Runner!

Tonight, I was glowing after my very first training to prepare for the San Diego Rock n Roll Marathon on May 31, 2015 to raise funds for the Jack & Julie Narcolepsy Scholarship! I was going to wait to make a big announcement but I had to share this now. I’ve been feeling overweight, dark…

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Narcolepsy – Am I Sick or Healthy?

If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest…

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Narcolepsy & Exercise: Narcolepsy Awareness Video #17

As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms?   My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you…

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Discovery Channel Narcolepsy Video

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and…

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REM Runner’s Summer Reading

I love summer. Lightening bugs, late sunsets, weddings, and trips to the beach! Here’s what is in my beach bag this summer: ISLAND PRACTICE Cobblestone Rash, Underground Tom, and Other Adventures of a Nantucket Doctor by Pam Belluck A spirited true story of a colorful, contrarian doctor on Nantucket, a world-famous yet strikingly offbeat corner of America. Dr.…

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To Fly: Running Mt Washington Road Race

I started this journey with a broken heart; I felt lost and alone without my Dad. I wanted so badly to re-connect with him on the mountain. While training, I faced fears and trampled over my comfort zone many times. I gained support from people near and far. By race day, my heart was filled with love…

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Mt Washington Road Race 2012 Video

Pictures are worth a thousand words. Here’s a short video re-capping my quest to honor my dad in the Mount Washington Road Race 2012 while living with narcolepsy.   Music: “We Can” by Jesse Ruben. This song helped me up the mountain. The artist generously gave me permission to use it in my video, so…

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