Running

A Day In The Life… NPR Features Narcolepsy

by julie on February 7, 2015

a day in the life of narcoleptic julie flygare narcolepsy the pulse whyy npr radio

I’m thrilled that NPR station WHYY featured my story of narcolepsy on the radio today. Listen online here: “A Day In The Life of a Narcoleptic” by Steven Jackson. When the reporter for NPR asked to follow me around for 24 hours, I said “YES!” right away. I’m always looking to raise awareness about narcolepsy.  I am […]

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Putting the RUNNER back in REM Runner!

by julie on December 30, 2014

rem runner julie flygare narcolepsy scholarship runner san diego marathon

Tonight, I was glowing after my very first training to prepare for the San Diego Rock n Roll Marathon on May 31, 2015 to raise funds for the Jack & Julie Narcolepsy Scholarship! I was going to wait to make a big announcement but I had to share this now. I’ve been feeling overweight, dark […]

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Narcolepsy – Am I Sick or Healthy?

by julie on June 29, 2014

Julie Flygare REMRunner narcolepsy spokesperson author wide awake and dreaming narcolepsy memoir narcoleptic project sleep health sleepiness runner inspiring narcolepsy advocate

If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest […]

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exercise and narcolepsy video julie flygare narcolepsy awareness video

As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms?   My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you […]

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i thought about how many preconceived prejudices would crumble when i trotted right along for 26 miles quote

 I love challenging preconceived prejudices! One of my favorite quotes that inspired my training for the Boston Marathon with narcolepsy. Quote #10:              Quote #11:  Quote #12:  Quote #13: 

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Discovery Channel Narcolepsy Video

by julie on December 9, 2012

narcolepsy discovery channel julie flygare

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and […]

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REM Runner’s Summer Reading

by julie on June 24, 2012

I love summer. Lightening bugs, late sunsets, weddings, and trips to the beach! Here’s what is in my beach bag this summer: ISLAND PRACTICE Cobblestone Rash, Underground Tom, and Other Adventures of a Nantucket Doctor by Pam Belluck A spirited true story of a colorful, contrarian doctor on Nantucket, a world-famous yet strikingly offbeat corner of America. Dr. […]

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To Fly: Running Mt Washington Road Race

by julie on June 20, 2012

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I started this journey with a broken heart; I felt lost and alone without my Dad. I wanted so badly to re-connect with him on the mountain. While training, I faced fears and trampled over my comfort zone many times. I gained support from people near and far. By race day, my heart was filled with love […]

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Mt Washington Road Race 2012 Video

by julie on June 18, 2012

Mount Washington Road Race Auto Road

Pictures are worth a thousand words. Here’s a short video re-capping my quest to honor my dad in the Mount Washington Road Race 2012 while living with narcolepsy.   Music: “We Can” by Jesse Ruben. This song helped me up the mountain. The artist generously gave me permission to use it in my video, so […]

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Today’s Portsmouth Herald features an article about my quest to honor my dad, Tom Flygare by running Mt Washington Road Race on Saturday while living with narcolepsy with cataplexy. Read: “Flygare to run Mt Washington race in honor of her dad,” by Charles McMahon, Portsmouth Herald, June 15, 2012. Please consider supporting my quest here. Packing for my […]

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