Risking To Live


by julie on November 8, 2015

Claire, Trinity & Julie - celebrating after the show!

 “We dance for laughter, we dance for tears, we dance for madness, we dance for fears, we dance for hopes, we dance for screams, we are the dancers, we create the dreams.” Last night, we truly celebrated NARCOLEPSY: NOT ALONE with big smiles and pride in Las Vegas! Accompanied by award-winning neurologist and Ph.D. narcolepsy specialist […]

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by julie on June 12, 2015

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As I crossed the start line of the San Diego Rock n Roll Marathon, runners started passing me. I laughed when a pack of Elvis(s) passed me. Typical. “Slow and steady. No one to beat. Nothing to prove,” I told myself. My shirt was drenched with sweat within 3 miles. Soon my hands raisined and […]


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The week of the marathon, I forgot I was running a marathon. “Have you booked your hotel yet?” my co-worker, Betsy asked me on Wednesday. “Uh, no, but I will…” My mind was preoccupied with other efforts, the Jack & Julie Narcolepsy Scholarship and Sleep Walk Dallas. So, I was last minute about everything – […]

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huffpost live

The psychological side of coping with narcolepsy is sometimes as challenging as the physical. I was thrilled to join HuffPost Live for an important discussion, “How To Manage The Psychological Side Of Illness” on Friday, Nov. 21, 2014. Watch below or here: Host Nancy Redd welcomed an inspiring panel of health advocates including yours truly, Juile Flygare (@REMRunner) Founder […]


Moving… Be Back Soon!

by julie on July 26, 2013


At age 13, I wrote to my aunt (also named Julie) who lived in Arizona – announcing that I would move to Los Angeles immediately to become an actress. I had just seen Romeo + Juliet and fallen in love with Leonardo DiCaprio. Once in Hollywood, I planned to meet Leo, co-star in a movie with […]


REM Runner’s 21 Day Yoga Challenge

by julie on June 14, 2013

21 days yoga challenge narcolepsy blog

I’m taking on a new challenge – doing yoga every day for 21 days! Returning from SLEEP 2013, my energy was low and my pants were tight. I needed a short-term goal to jump-start my summer. Today is day 4 of my challenge and I’m feeling GREAT. My body is sore, but in that good […]


leap and the net will appear zen saying

My boyfriend, Alex recently surprised me with a trip to Ultra Music Festival in Miami, FL – the world’s largest electronic concert. As a music lover, I was thrilled. As a person with narcolepsy, I was nervous.  Over 300,000 people attend this three day dance party with seven stages and over 150 performers including world-famous Tiesto, […]


rem runners top 9 inspiring female health advocates day one profile photos

In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams.  These women are trailblazers – leading the way for other women to optimize their health and triumph over adversity. Here are the first three: 1. Kathrine Switzer, First Woman to Enter the Boston Marathon Less than 50 […]


anything ive ever done that was ultimately worthwhile initially scared me to death

I wasn’t born brave. I didn’t wake up the day after being diagnosed with narcolepsy and sign up for a marathon or tell my story into a TV camera. I was scared too – scared to death of what my future held and what people would think of my narcolepsy. So if you want to take […]


Before I Die…

by julie on July 16, 2012

before I die Washington DC Wall

“Before I die…” caught me off-guard on Saturday. I was driving down 14th street NW in DC, when I slammed on the brakes and pulled over. I didn’t know what to expect, but the beautiful messages of hope and love made my day! I took photos but  didn’t contribute to the wall. I mulled it over […]

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