Risking To Live

Moving… Be Back Soon!

by julie on July 26, 2013

packed-up-potential2

At age 13, I wrote to my aunt (also named Julie) who lived in Arizona – announcing that I would move to Los Angeles immediately to become an actress. I had just seen Romeo + Juliet and fallen in love with Leonardo DiCaprio. Once in Hollywood, I planned to meet Leo, co-star in a movie with [...]

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REM Runner’s 21 Day Yoga Challenge

by julie on June 14, 2013

21 days yoga challenge narcolepsy blog

I’m taking on a new challenge – doing yoga every day for 21 days! Returning from SLEEP 2013, my energy was low and my pants were tight. I needed a short-term goal to jump-start my summer. Today is day 4 of my challenge and I’m feeling GREAT. My body is sore, but in that good [...]

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leap and the net will appear zen saying

My boyfriend, Alex recently surprised me with a trip to Ultra Music Festival in Miami, FL – the world’s largest electronic concert. As a music lover, I was thrilled. As a person with narcolepsy, I was nervous.  Over 300,000 people attend this three day dance party with seven stages and over 150 performers including world-famous Tiesto, [...]

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rem runners top 9 inspiring female health advocates day one profile photos

In honor of Women’s History Month, I am profiling nine female health advocates who inspire me to follow my dreams.  These women are trailblazers – leading the way for other women to optimize their health and triumph over adversity. Here are the first three: 1. Kathrine Switzer, First Woman to Enter the Boston Marathon Less than 50 [...]

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anything ive ever done that was ultimately worthwhile initially scared me to death

I wasn’t born brave. I didn’t wake up the day after being diagnosed with narcolepsy and sign up for a marathon or tell my story into a TV camera. I was scared too – scared to death of what my future held and what people would think of my narcolepsy. So if you want to take [...]

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Before I Die…

by julie on July 16, 2012

before I die Washington DC Wall

“Before I die…” caught me off-guard on Saturday. I was driving down 14th street NW in DC, when I slammed on the brakes and pulled over. I didn’t know what to expect, but the beautiful messages of hope and love made my day! I took photos but  didn’t contribute to the wall. I mulled it over [...]

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“Don’t be afraid of the space between your dreams and reality. If you can dream it, you can make it so.” I dream a lot, but one dream stood out recently: I saw myself  in a handstand position – whirling my legs around like I was an acrobatic superstar. Um, yeah right. I love yoga, [...]

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art journaling 2

I signed up for an art journaling workshop at Tranquil Space last summer, and almost didn’t go because I feared “wasting my time.”  I’ll never forget when the wonderful instructor, Kimberly said, “Write down what you want by this time next year, July 23, 2012.” My whole body clenched up. Somewhere along the way, I’d forgotten that [...]

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To Fly: Running Mt Washington Road Race

by julie on June 20, 2012

photo-389

I started this journey with a broken heart; I felt lost and alone without my Dad. I wanted so badly to re-connect with him on the mountain. While training, I faced fears and trampled over my comfort zone many times. I gained support from people near and far. By race day, my heart was filled with love [...]

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Mt Washington Road Race 2012 Video

by julie on June 18, 2012

Mount Washington Road Race Auto Road

Pictures are worth a thousand words. Here’s a short video re-capping my quest to honor my dad in the Mount Washington Road Race 2012 while living with narcolepsy.   Music: “We Can” by Jesse Ruben. This song helped me up the mountain. The artist generously gave me permission to use it in my video, so [...]

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