REM Runner Blog

Happy 1st Birthday, NARCOLEPSY: NOT ALONE!

by julie on July 24, 2014

narcolepsy not alone giveaway narcolepsy infographic wide awake and dreaming memoir julie flygare project sleep

On July 24, 2013, I launched the NARCOLEPSY: NOT ALONE campaign, unsure if anyone would join me. One year later, I can hardly believe the positive energy and enthusiasm supporting the campaign around the world. You’ve touched my heart beyond words, bringing countless smiles to my face and also tears of connection and joy. As […]

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Project Sleep 501c3 nonprofit organization sleep health and sleep disorder awareness

Project Sleep is officially a 501(c)(3) tax exempt non-profit organization – which means that all generous donations are now tax-deductible!  My heart jumped out of my chest when I received the news. I read the official IRS determination letter about 20 times to make sure I wasn’t dreaming. I could hardly believe it, my long-time […]

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cheyenne sierra julie Flygare Narcolepsy Book Signing Wide Awake and Dreaming NARCOLEPSY NOT ALONE NYC Event

“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not […]

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narcolepsy advertisement public service announcement julie flygare narcoleptic cataplexy wide awake and dreaming author project sleep founder julie flygare

EXCITING UPDATE: Honda will create a 30-second Narcolepsy Awareness Public Service Announcement (PSA). I am beyond honored to serve as the spokesperson/talent in PSA and I’m currently working with Honda’s ad agency to develop the content.  This is an incredible turn-of-events in our inspiring community initiative thanks to each and every person who signed the petition and raised your voice. Big thanks to […]

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narcolepsy not alone narcolepsy awareness campaign worcester news uk article apirl scarlett lee julie flygare project sleep awareness

“Despite dealing with the nightmares caused by her condition, April Scarlett Lee’s cartoons have gone global as part of Project Sleep!” April-Scarlett Lee’s narcolepsy journey and the NARCOLEPSY: NOT ALONE campaign are featured in the news this week! Read “Tackling Narcolepsy” by Lydia Johnson, Worcester News, July 7, 2014 [PDF]. I’m so proud to call […]

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xander bmx track racing

Meet Xander, a 4-year-old superstar with narcolepsy living in Canada. Xander has big bike racing dreams and isn’t letting his narcolepsy slow him down. Watch Xander fly by in this video: This was Xander’s first Bmx Bootcamp for the season. Bmx track racing is a form of off-road bicycle racing, derived from motocross racing. I […]

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Narcolepsy – Am I Sick or Healthy?

by julie on June 29, 2014

Julie Flygare REMRunner narcolepsy spokesperson author wide awake and dreaming narcolepsy memoir narcoleptic project sleep health sleepiness runner inspiring narcolepsy advocate

If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest […]

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Julie Flygare Narcolepsy Not Alone Honda Ad Pulled Apology Issued to Narcolepsy Community We did it

WE DID IT! Thank you for supporting the petition asking Honda to remove the inaccurate “Synth and Seattleites” ad stating people with narcolepsy shouldn’t drive and to dedicate resources toward truthful awareness. We collected over 2,100 signatures in 36 hours! Late last night, we saw our first sign of response. The ad’s YouTube video (http://youtu.be/rC-zopOGVOI) became PRIVATE so […]

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Screen shot 2014-06-22 at 12.21.33 AM

Honda is “Fit For You” – Unless You Have NarcolepsyHonda Fit Ad Implies People with Narcolepsy are Not Fit to Drive As a leading narcolepsy spokesperson and award-winning author of “Wide Awake and Dreaming: A Memoir of Narcolepsy”, please join me in requesting that Honda please remove the “Synth and Seattleites” (http://youtu.be/rC-zopOGVOI ) advertisement promoting […]

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americna journal of medicine logo

I’m on PubMed! I’m thrilled to announce that the American Journal of Medicine accepted my article for publication, Flygare J, Parthasarathy S, Narcolepsy: Let the Patient’s Voice Awaken Us!, The American Journal of Medicine (2014), doi: 10.1016/j.amjmed.2014.05.037. I was honored to collaborate with Dr. Sai Parthasarathy, MD on this article. Dr. Parthasarathy is Associate Professor of Medicine […]

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