Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!
Happy Suddenly Sleepy Saturday! I created this infographic to explain why it’s so important we raise up our voices about narcolepsy: 75% of people with narcolepsy are undiagnosed and untreated Only 50% of adults believe narcolepsy can significantly impact overall health, despite serious nature of the disorder Only 70% of adults have heard of narcolepsy – the [...]
In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy: 10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious [...]
“I love sleep. My life has the tendency to fall apart when I’m awake, you know?”-Ernest Hemingway Happy Sleep Week! It’s National Sleep Awareness Week (March 2-9, 2014). This week, you can sleep in and wear your pajamas to work. Tell them I gave you permission! Inspirational Quote #6: Inspirational Quote #7: Inspirational Quote #8: Inspirational Quote [...]
“We may be RARE, but we’ve got ROAR.”-Julie Flygare Yes, I’m (awkwardly) quoting myself today. Happy Rare Disease Day! The rare disease community is a huge source of inspiration to me. Many struggles I thought were “only narcolepsy”, are quite universal for rare disease patients. We have difficulty finding proper diagnosis. We have limited treatment options, which [...]
”The secret of change is to focus all of your energy, not on fighting the old, but on building the new.” -Socrates Living with narcolepsy, my energy is limited. It’s important to prioritize carefully and not fight losing battles. What’s done is done. EVER ONWARD! Inspirational Quote #13: Inspirational Quote #12: Inspirational Quote #11: Inspirational Quote #10: Inspirational Quote [...]
“People who are crazy enough to think they can change the world, are the ones who do.”-Apple Computers Thank you to my dear friend, Sunny Dietra in Florida for sending me this quote! Inspirational Quote #9 Inspirational Quote #10 Inspirational Quote #11 Inspirational Quote #12 Inspirational Quote #13 Check back for more quotes soon!
Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below [...]
“In the end, only three things matter: how much you loved, how gently you lived, and how gracefully you let go of things not meant for you.”-Buddha Inspirational Quote #11: Inspirational Quote #12: Inspirational Quote #13: Check back soon for more inspiring quotes!
”If you are always trying to be NORMAL,you will never know how AMAZING you can be.”-Maya Angelou Normal is BORING! Why narcolepsy is NOT NORMAL in the best way possible. More inspiring quotes coming soon! Inspirational Quote #12: Inspirational Quote #13: