“Your dream doesn’t have an expiration date.Take a deep breath and try again.”-KT Witten About a year ago, one of my best friends, Gail added this quote (IN ALL CAPS) to her email signature. I smiled cause I love inspirational quotes. But then something odd happened – over the past year, I watched Gail make [...]
I’m so honored to be featured by Women You Should Know in today’s fantastic feature article “You Should Know Someone With Narcolepsy… Her Name Is Julie Flygare”. The article states: “When Women You Should Know first came to know of Julie, she was described as, ‘a dynamo Rock Star, who accomplishes everything she does with grace, humility, courage, and strength, [...]
I compiled this list directly quoting people with narcolepsy and their family members who reported on accommodations received for narcolepsy during education (from grade school to graduate school). I’ve broken the accommodations into categories. Every student with narcolepsy is different. Every school is different. What works best for your student may be a creative combination [...]
REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed. Diana’s Guest Post: 1. You must be an advocate for your child. No [...]
“Most of the important things in the world have been accomplished by people who have kept on trying when there seemed to be no hope at all.” -Dale Carnegie For years, my book was a long-shot in the dark. I worked toward this goal without knowing if/when I would “succeed”. I faced skepticism and unforeseen [...]
Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!
“I love sleep. My life has the tendency to fall apart when I’m awake, you know?”-Ernest Hemingway Happy Sleep Week! It’s National Sleep Awareness Week (March 2-9, 2014). This week, you can sleep in and wear your pajamas to work. Tell them I gave you permission! Inspirational Quote #6: Inspirational Quote #7: Inspirational Quote #8: Inspirational Quote [...]
“We may be RARE, but we’ve got ROAR.”-Julie Flygare Yes, I’m (awkwardly) quoting myself today. Happy Rare Disease Day! The rare disease community is a huge source of inspiration to me. Many struggles I thought were “only narcolepsy”, are quite universal for rare disease patients. We have difficulty finding proper diagnosis. We have limited treatment options, which [...]
“People who are crazy enough to think they can change the world, are the ones who do.”-Apple Computers Thank you to my dear friend, Sunny Dietra in Florida for sending me this quote! Inspirational Quote #9 Inspirational Quote #10 Inspirational Quote #11 Inspirational Quote #12 Inspirational Quote #13 Check back for more quotes soon!
Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below [...]