Overcoming Adversity

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I’m so excited to share my Health:Further keynote presentation video. I delivered this speech to over 1,000 healthcare professionals in Nashville, TN last year. My speeches are rarely online – so be sure to check this out!  Watch video: I shared here how mad nervous I was for this speech, but I managed to pull it off! […]

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CNN Article on My Marathon with Narcolepsy

by julie on April 27, 2017

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I’m thrilled to share CNN Health’s feature article Runner: Having narcolepsy is harder than a marathon. This Sleep Awareness Week, please share with your friends and family to raise critical narcolepsy awareness. Working with CNN on this piece was particularly meaningful. I first spoke with the reporter, Maria, in January two months before the race after she’d read […]

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Alanna lifting weights in Sydney, Australia and Julie  running in Los Angeles, USA

One of the best parts of the Griffith Park Trial Marathon took place about 10 days BEFORE the race. Arriving home from work one night around 8:00 p.m., I was totally drained and wanted to call it a night, but I had to go running. Ugh. I’d run over 270 miles in four months, and only had […]

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Photo by Howie Stern

On Saturday, March 4, 2017, I took on the Griffith Park Trail Marathon as a person with narcolepsy to raise funds for Project Sleep’s Jack & Julie Narcolepsy Scholarship. As I said here, I was nervous and uncertain. On the morning of the race, I woke up lethargic and stiff, but I showed up. I had […]

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We all have a story to tell. Let’s get busy telling yours! I’m so excited to share the news that Project Sleep is now accepting applications for the Rising Voices of Narcolepsy leadership training program. However, the application deadline is quickly approaching in 9 days on February 24th, 2017 at 5:00pm PST, so please view summer 2017 […]

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Two weeks ago, I set out for my longest steepest training run yet to prepare for Griffith Park Trail Marathon on March 4th. I documented my 17.4 mile marathon training experience via Instagram Story and it was so fun, I had to share here: I hope you enjoyed coming along my training run with me! […]

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Re-Discovering Halloween with Narcolepsy

by julie on December 5, 2016

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Nine Halloweens ago, I felt like a “monster” – lacking the energy and health to play the role of the fun fabulous party host I wanted to be. At the time, I was a few weeks into my narcolepsy diagnosis and struggling terribly to adjust. Check out chapter 11 of my memoir, Wide Awake and Dreaming: […]

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Raising Narcolepsy Awareness in Italy!

by julie on November 13, 2016

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On Saturday Sept. 24, 2016, I stood outside the fancy lecture hall at the University of Bologna in Italy, fidgeting with nerves. I picked up my headset for the “live translation” system that would be my lifeline for the day. Traveling to Italy to speak at the 20th Anniversary of AIN (Associazione Italiana Narcolettici e […]

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I felt a scratch in my throat at Stanford’s Medicine X conference.  Flying to Italy, pressure spread across my forehead. Waking early the next morning in Bologna, a breeze swirled in through my open hotel window. I smiled and then I coughed… And coughed… And coughed. It was official. I was sick. In Italy.   How could […]

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Health Further Conference 2016 Flygare Narcolepsy 6

Wow, the last month has been one of the busiest of my life, but all great stuff (as I try to remind myself when I feel overwhelmed). Now, it’s time to catch you up on what’s been happening! Once I heard about the possibility of speaking at Health:Further on August 24 to over 1,000 healthcare professionals in Nashville, […]

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