News/Media

Join Us! Sleep Walk Tampa Bay

by julie on August 1, 2014

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In one month, on Sunday August 31, 2014, we will be walking on the beach to celebrate sleep in St. Pete Beach, FL! Please join myself and local host, Jessica starting at 9:00 a.m. for a 1.5 mile scenic beach walk and sleep spirit contest. Order event t-shirts by August 12, 2014. Join Project Sleep to celebrate […]

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current concepts in sleep julie flygare narcolepsy speaker tradewinds resort st pete beach

I’m honored to be a featured speaker at the upcoming Current Concepts in Sleep Conference in St. Pete Beach, FL on August 29-30, 2014. I will be sharing my inspirational narcolepsy presentation – from collapsing to the ground to becoming a vocal advocate. The Current Concepts in Sleep Conference will take place at the picturesque TradeWinds Resort. The agenda features […]

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Happy 1st Birthday, NARCOLEPSY: NOT ALONE!

by julie on July 24, 2014

narcolepsy not alone giveaway narcolepsy infographic wide awake and dreaming memoir julie flygare project sleep

On July 24, 2013, I launched the NARCOLEPSY: NOT ALONE campaign, unsure if anyone would join me. One year later, I can hardly believe the positive energy and enthusiasm supporting the campaign around the world. You’ve touched my heart beyond words, bringing countless smiles to my face and also tears of connection and joy. As […]

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Project Sleep 501c3 nonprofit organization sleep health and sleep disorder awareness

Project Sleep is officially a 501(c)(3) tax exempt non-profit organization – which means that all generous donations are now tax-deductible!  My heart jumped out of my chest when I received the news. I read the official IRS determination letter about 20 times to make sure I wasn’t dreaming. I could hardly believe it, my long-time […]

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cheyenne sierra julie Flygare Narcolepsy Book Signing Wide Awake and Dreaming NARCOLEPSY NOT ALONE NYC Event

“The most beautiful people we have known are those who have known defeat, known suffering, known struggle, known loss, and have found their way out of the depths. These persons have an appreciation, a sensitivity, and an understanding of life that fills them with compassion, gentleness, and a deep loving concern. Beautiful people do not […]

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narcolepsy advertisement public service announcement julie flygare narcoleptic cataplexy wide awake and dreaming author project sleep founder julie flygare

EXCITING UPDATE: Honda will create a 30-second Narcolepsy Awareness Public Service Announcement (PSA). I am beyond honored to serve as the spokesperson/talent in PSA and I’m currently working with Honda’s ad agency to develop the content.  This is an incredible turn-of-events in our inspiring community initiative thanks to each and every person who signed the petition and raised your voice. Big thanks to […]

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narcolepsy not alone narcolepsy awareness campaign worcester news uk article apirl scarlett lee julie flygare project sleep awareness

“Despite dealing with the nightmares caused by her condition, April Scarlett Lee’s cartoons have gone global as part of Project Sleep!” April-Scarlett Lee’s narcolepsy journey and the NARCOLEPSY: NOT ALONE campaign are featured in the news this week! Read “Tackling Narcolepsy” by Lydia Johnson, Worcester News, July 7, 2014 [PDF]. I’m so proud to call […]

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Julie Flygare Narcolepsy Not Alone Honda Ad Pulled Apology Issued to Narcolepsy Community We did it

WE DID IT! Thank you for supporting the petition asking Honda to remove the inaccurate “Synth and Seattleites” ad stating people with narcolepsy shouldn’t drive and to dedicate resources toward truthful awareness. We collected over 2,100 signatures in 36 hours! Late last night, we saw our first sign of response. The ad’s YouTube video (http://youtu.be/rC-zopOGVOI) became PRIVATE so […]

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Honda is “Fit For You” – Unless You Have NarcolepsyHonda Fit Ad Implies People with Narcolepsy are Not Fit to Drive As a leading narcolepsy spokesperson and award-winning author of “Wide Awake and Dreaming: A Memoir of Narcolepsy”, please join me in requesting that Honda please remove the “Synth and Seattleites” (http://youtu.be/rC-zopOGVOI ) advertisement promoting […]

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americna journal of medicine logo

I’m on PubMed! I’m thrilled to announce that the American Journal of Medicine accepted my article for publication, Flygare J, Parthasarathy S, Narcolepsy: Let the Patient’s Voice Awaken Us!, The American Journal of Medicine (2014), doi: 10.1016/j.amjmed.2014.05.037. I was honored to collaborate with Dr. Sai Parthasarathy, MD on this article. Dr. Parthasarathy is Associate Professor of Medicine […]

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