Narcolepsy Event

Narcolepsy Julie Flygare Hoag Sleep Symposium 2017

I’m so excited to give my narcolepsy presentation this Saturday, March 25, 2017, at Hoag Neurosciences Institute’s Sleep Symposium in Irvine, CA. The event is FREE and open to the public, register here to save your spot! The event kicks of at 9:00 a.m. in the Hoag Hospital Irvine Auditorium. I speak from 10:45 – 11:30 a.m. and I’ll be […]

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Alanna lifting weights in Sydney, Australia and Julie  running in Los Angeles, USA

One of the best parts of the Griffith Park Trial Marathon took place about 10 days BEFORE the race. Arriving home from work one night around 8:00 p.m., I was totally drained and wanted to call it a night, but I had to go running. Ugh. I’d run over 270 miles in four months, and only had […]

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Weekend Plans? Sleep In to Raise Awareness!

by julie on March 10, 2017

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After running Griffith Park Trail Marathon last weekend, I couldn’t be any more excited for Sleep In 2017 (#SleepIn2017) this weekend! Please join me by staying in bed for 12-48 hours to raise awareness about sleep health and sleep disorders. Yep, you heard me right… The challenge is to REST and SLEEP. Register here and invite your friends and family to […]

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We all have a story to tell. Let’s get busy telling yours! I’m so excited to share the news that Project Sleep is now accepting applications for the Rising Voices of Narcolepsy leadership training program. However, the application deadline is quickly approaching in 9 days on February 24th, 2017 at 5:00pm PST, so please view summer 2017 […]

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Two weeks ago, I set out for my longest steepest training run yet to prepare for Griffith Park Trail Marathon on March 4th. I documented my 17.4 mile marathon training experience via Instagram Story and it was so fun, I had to share here: I hope you enjoyed coming along my training run with me! […]

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2016: A Year in Narcolepsy Advocacy with Julie Flygare

From the White House to Italy and Ireland – 2016 was an AMAZING year of narcolepsy advocacy and Project Sleep programming! This video shares this whirlwind of a year.  It was a joy and honor to give 12 presentations to doctors, researchers, med students, patients and families across the country and around the world this […]

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This fall, I was BUSY spreading narcolepsy awareness to doctors, medical students and researchers across the country. Upon returning from Italy, I started back at my full-time job in pancreatic cancer advocacy first thing the next morning. The following evening, I traveled to UCLA Medical School to give my narcolepsy presentation for first-year medical students […]

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Raising Narcolepsy Awareness in Italy!

by julie on November 13, 2016

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On Saturday Sept. 24, 2016, I stood outside the fancy lecture hall at the University of Bologna in Italy, fidgeting with nerves. I picked up my headset for the “live translation” system that would be my lifeline for the day. Traveling to Italy to speak at the 20th Anniversary of AIN (Associazione Italiana Narcolettici e […]

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I felt a scratch in my throat at Stanford’s Medicine X conference.  Flying to Italy, pressure spread across my forehead. Waking early the next morning in Bologna, a breeze swirled in through my open hotel window. I smiled and then I coughed… And coughed… And coughed. It was official. I was sick. In Italy.   How could […]

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Narcolepsy Advocate in Neurology Now Magazine

by julie on October 12, 2016

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Hot off the presses! I’m proud to be featured in Neurology Now’s article, Self Diagnose Successfully, on becoming an empowered and informed patient. I love Neurology Now magazine but narcolepsy isn’t included much, so I am thrilled to help raise some narcolepsy awareness with this neurology audience. Also, it’s super cool that my MedX friend, Matthew Might is […]

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