I’m excited to share, ”Narcolepsy Patients Hope FDA Attention Will Spur Drug Research, Shed Misperceptions” by Brenda Sandburg, The Pink Sheet, May 13, 2013. [View/Download PDF] This great article describes narcolepsy’s inclusion in FDA’s Patient Focused Drug Development Iniative. Thank you Ms. Sandburg and the Pink Sheet for featuring narcolepsy in your publication! More Info:Narcolepsy Selected for [...]
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On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio stations (KAAA 1230 AM and KZZZ 1490 AM). It was so much fun to discuss my book with Dr. [...]
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My latest video describes accommodations for succeeding in school with narcolepsy. Watch below or on YouTube: Check back soon for more videos. Thank you to Alex Withrow for generously giving his time and pro filming skills to make this possible! Watch full video series Watch Video #14: Tips for Students with NarcolepsyWatch video #12: National [...]
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We all know the punch line of the narcolepsy joke – person falls asleep while standing or in the middle of the conversation. My daytime sleepiness doesn’t look like this. On the surface, it doesn’t look like much of anything. Internally – my sleepiness aches. My limbs become heavy and pressure pushes on my skull. [...]
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Recently, I shared my story of narcolepsy with renowned women’s health advocate and EmpowHER founder, Michelle King Robson. EmpowHER is an award-winning social health company for women, providing visitors access to one of the largest women’s health and wellness content libraries on the web, as well as the largest online community of women discussing their [...]
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Dr. Michael Twery (Director of the National Center on Sleep Disorders Research at NHLBI) recently discussed narcolepsy research with leading expert, Dr. Mignot (of Stanford University). This video provides a great overview of why narcolepsy develops in certain individuals and the innovative treatments on the horizon for this neurological illness! Thank you Dr. Twery, Dr. Mignot and NHLBI [...]
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Recently, I was a guest on Forward Motion with Karen Allyn (MCM Channel 21). Re-cap and fun photos here. The video is now online! Watch here or on YouTube. Thank you for checking out my interview! Big thanks to Karen Allyn and the Forward Motion team.
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“I wanted to ensure her that I love her and would support her through anything.” -Kevin Gonzales REM Runner’s Note: This is a story of love. I was thrilled to learn about the Dream Big Concert and even more thrilled to hear Kevin and Megan’s journey toward creating this event. I asked Kevin to write a [...]
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Listen here for my SiriusXM Radio’s Broadminded Show interview. This morning, I arrived at the SiriusXM Radio studios at sun-rise. It was great to see the Broads again, Christine and Molly. We talked about my book, love life, National Sleep Awareness Week and the National Sleep Walk! I hope you enjoy the segment. Thank you for [...]
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REM Runner’s Note: I asked my dear friend and Narcolepsy Bed Race creator, Dr. Mark Patterson to write a post about his exciting event on March 9, 2013 in Roanoke, VA. I’m inspired by Dr. Patterson’s efforts. Join me in cheering him on! Guest Post Written by Dr. Mark Patterson: Following a family member’s diagnosis [...]
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