Narcolepsy Diagnosis

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I’m so honored to be featured by Women You Should Know in today’s fantastic feature article “You Should Know Someone With Narcolepsy… Her Name Is Julie Flygare”.  The article states: “When Women You Should Know first came to know of Julie, she was described as, ‘a dynamo Rock Star, who accomplishes everything she does with grace, humility, courage, and strength, [...]

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School Accommodations for Narcolepsy

by julie on March 30, 2014

school accommodations naroclepsy julie flygare narcolepsy blog author speaker memoir narcolepsy

I compiled this list directly quoting people with narcolepsy and their family members who reported on accommodations received for narcolepsy during education (from grade school to graduate school). I’ve broken the accommodations into categories. Every student with narcolepsy is different. Every school is different. What works best for your student may be a creative combination [...]

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narcolepsy 504 plan for student narcolepsy high school tips parents diana brooks

REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed.  Diana’s Guest Post: 1. You must be an advocate for your child. No [...]

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 Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!

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Why Advocate for Narcolepsy?

by julie on March 8, 2014

why advocate for narcolepsy julie flygare narcolepsy patient spokesperson project sleep infographic project sleep national sleep awareness week

Happy Suddenly Sleepy Saturday! I created this infographic to explain why it’s so important we raise up our voices about narcolepsy: 75% of people with narcolepsy are undiagnosed and untreated Only 50% of adults believe narcolepsy can significantly impact overall health, despite serious nature of the disorder Only 70% of adults have heard of narcolepsy – the [...]

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ten things you didn't know about narcolepsy julie flygare narcolespy patient spokesperson

In honor of National Sleep Awareness Week, the top 10 things you didn’t know about narcolepsy:  10. It’s not like the moviesRat Race, Deuce Bigalow: Male Gigolo and Moulin Rouge feature comical characters with narcolepsy. Falling asleep mid-sentence may happen in real-life, but it’s not the typical everyday experience. Narcolepsy is more than sleepiness, involving other serious [...]

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narcolepsy event julie flygare narcolepsy spokesperson suddenly sleepy saturday march 8 2014 national sleep awareness week

Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below [...]

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sleep walk 2014 project sleep national sleep awareness week events

How are you celebrating National Sleep Awareness Week 2014? I’m thrilled to announce four Sleep Walk Events across the USA! Sleep Walk Events are the signature event series of the new non-profit organization, Project Sleep. Please join us in raising awareness about sleep health and sleep disorders. Sleep Walk Tuscaloosa – March 8, 2014 at [...]

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narcolepsy pregnancy

REM Runner’s Note: Planning pregnancy with narcolepsy? I’m thrilled to share guest stories about pregnancy and parenting with narcolepsy. It’s such an important topic for many and personally, I think parents with narcolepsy are SUPERHEROES!  Thank you, Natalie for sharing your experience and congratulations on being a new mom. Natalie’s Guest Post: My husband and [...]

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I’m so thrilled to share Harvard Medical School’s new Narcolepsy Website – a fantastic user-friendly resource for patients and supporters alike. There are videos, PDFs and basic information about narcolepsy symptoms, diagnosis and treatment along with suggestions for living well with narcolepsy – including tips for daily life, school, work and safety.  I had the [...]

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