Patient Advocacy at Public Relations & Communications Summit 2014

After my book-signing event in NYC, I shared my patient leader perspective at the Public Relations and Communications Summit in New Jersey on July 14, 2014. Our patient panel was led by Bob Brooks of WEGO Health and I was honored to share the stage with Michael Fernandez, an inspiring award-winning Migraine Health Activist and author of migrainediscussions.com. While…

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Why Advocate for Narcolepsy?

Happy Suddenly Sleepy Saturday! I created this infographic to explain why it’s so important we raise up our voices about narcolepsy: 75% of people with narcolepsy are undiagnosed and untreated Only 50% of adults believe narcolepsy can significantly impact overall health, despite serious nature of the disorder Only 70% of adults have heard of narcolepsy – the…

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Unveiling Julie Flygare’s Narcolepsy Advocacy App

Today, I’m thrilled to release Julie Flygare’s Narcolepsy Advocacy Center – the first-ever narcolepsy mobile app available to download for FREE today (instructions below). Watch Introductory Video:   Download Instructions: From the iTunes App Store or Google Play Store, download Mobile Health Library When download is complete, launch the app and “Accept” the Terms &…

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