New Research for Breastfeeding Mothers with Narcolepsy

Guest Contributors: Emily Barker, Ph.D. and Katherine Sharkey, M.D., Ph.D. New research published in the journal Sleep Medicine suggests that lactating women who take Xyrem (sodium oxybate) to treat narcolepsy with cataplexy can time their breastfeeding to avoid exposing nursing infants to elevated levels of the drug in milk (Barker et al., 2017). Data from…

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Narcolepsy e-Patient Keynote to over 1,000 Healthcare Leaders at Health:Further Summit

I’m so honored to be a keynote speaker at Health:Further Summit in Nashville, TN on August 23-24, where I’ll join the stage with industry leaders to talk innovation and advanced solutions for the biggest issues facing healthcare. For this audience of healthcare executives and innovators, I’ll debut a new speech called, In Sickness or Health? Breaking Down Barriers…

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Pregnancy with Narcolepsy: Guest Post by Natalie Kwadrans

REM Runner’s Note: Planning pregnancy with narcolepsy? I’m thrilled to share guest stories about pregnancy and parenting with narcolepsy. It’s such an important topic for many and personally, I think parents with narcolepsy are SUPERHEROES!  Thank you, Natalie for sharing your experience and congratulations on being a new mom. Natalie’s Guest Post: My husband and…

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Save the Date: FDA Narcolepsy Public Meeting on Sept 24, 2013

Interested in shaping future narcolepsy drug development? Here’s your chance! On September 24, 2013, FDA will host the Narcolepsy Public Meeting to obtain patients’ perspectives on the impact of narcolepsy on daily life as well as the available therapies for narcolepsy. This past year, we worked together to secure this tremendous opportunity with FDA. The September 24 meeting…

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Taking on Narcolepsy as a New Mom: Guest Post by Cherae Robinson

REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if they’ll have the energy to care for a child. Fair enough. Yet I’ve met many inspiring parents living with narcolepsy. I’m thrilled to share one amazing story…

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