New Research for Breastfeeding Mothers with Narcolepsy

Guest Contributors: Emily Barker, Ph.D. and Katherine Sharkey, M.D., Ph.D. New research published in the journal Sleep Medicine suggests that lactating women who take Xyrem (sodium oxybate) to treat narcolepsy with cataplexy can time their breastfeeding to avoid exposing nursing infants to elevated levels of the drug in milk (Barker et al., 2017). Data from…

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Pregnancy with Narcolepsy: Guest Post by Natalie Kwadrans

REM Runner’s Note: Planning pregnancy with narcolepsy? I’m thrilled to share guest stories about pregnancy and parenting with narcolepsy. It’s such an important topic for many and personally, I think parents with narcolepsy are SUPERHEROES!  Thank you, Natalie for sharing your experience and congratulations on being a new mom. Natalie’s Guest Post: My husband and…

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Guest Post: Dear Terrie

Guest post by Terrie in response to the “Dear Diagnosis” Blogathon prompt. Read more letters and join us here. ——– Dear Terrie,   You are about to go on a journey that will take you to many lows along the way. Your doctor will soon confirm that you have Narcolepsy. You will experience all the symptoms…

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Taking on Narcolepsy as a New Mom: Guest Post by Cherae Robinson

REM Runner’s Intro: Meet Cherae – a teen mother, college graduate, medical assistant, 20 year old woman with narcolepsy. Young people with narcolepsy may worry about having children, wondering if they’ll have the energy to care for a child. Fair enough. Yet I’ve met many inspiring parents living with narcolepsy. I’m thrilled to share one amazing story…

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