Narcolepsy on Discovery Channel Featuring Julie Flygare

This Saturday, December 8, 2012 at 8 a.m. (EST) – Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST).  It was an honor to work…

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Mt Washington Road Race 2012 Video

Pictures are worth a thousand words. Here’s a short video re-capping my quest to honor my dad in the Mount Washington Road Race 2012 while living with narcolepsy.   Music: “We Can” by Jesse Ruben. This song helped me up the mountain. The artist generously gave me permission to use it in my video, so…

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Portsmouth Herald Features Julie Flygare’s Quest to Honor Father in Mt Washington Road Race

Today’s Portsmouth Herald features an article about my quest to honor my dad, Tom Flygare by running Mt Washington Road Race on Saturday while living with narcolepsy with cataplexy. Read: “Flygare to run Mt Washington race in honor of her dad,” by Charles McMahon, Portsmouth Herald, June 15, 2012. Please consider supporting my quest here. Packing for my…

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Blindsided: Navigating Life’s Construction Zones

With one week until I take on “one of the most grueling road races in the world,”  I must admit, I entered this race blindly. My heart said “Yes!” before my body and brain weighed in. I wanted to honor my father on Father’s Day weekend. When I began training, I realized this mountain was a bit…

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Quit It To Win It

I QUIT! In less than one mile. I felt more exhausted than after finishing the Boston Marathon. How could this be? I was scheduled for one of my hardest training workouts for MWRR, yet I was truly running on empty.   Oddly, this was not an episode of EDS (excessive daytime sleepiness) associated with narcolepsy, I’d…

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The Silver Lining

“The next time you encounter fear, consider yourself lucky.This is where the courage comes in. Usually we think that brave people have no fear. The truth is that they are intimate with fear.” -Pema Chödrön  Today is one of my final hard training days before I take on “one of the most grueling road races in…

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Legs on Fire: Starting My Training for Mt Washington Road Race

    Exciting update: I’ve received an official registration to run the Mt. Washington Road Race in my Father’s honor!   The CEO of Northeast Delta Dental (the event sponsor) got word of my quest and contacted me to offer a complimentary registration. Turns out, a friend in the narcolepsy community tweeted about my quest and…

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Crow Pose: To Risk Falling On Your Nose

  A crow is a large garbage-eating bird with a loud cry.   It is also inverted balancing yoga pose in which you prop your thighs against armpits, squeeze abs tight, hinge forward and pray not to nose-dive! Over the past 6 months of practicing yoga, my reaction to crow pose has been consistent: “Oh…

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When Motivation Isn’t For Sale (Part II)

As previously noted, motivation doesn’t grow on trees.  It’s not for sale either – not even at Lululemon. Sorry! Three more motivation techniques:3.  One day moment at a time: It can be tempting to assign one feeling or sensation to an entire day.  People often say: “I’m tired today,” or “I’m down this week.” Yet, physical sensations and mental…

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