Exercise and Narcolepsy

CNN Article on My Marathon with Narcolepsy

by julie on April 27, 2017

CNN_Health1

I’m thrilled to share CNN Health’s feature article Runner: Having narcolepsy is harder than a marathon. This Sleep Awareness Week, please share with your friends and family to raise critical narcolepsy awareness. Working with CNN on this piece was particularly meaningful. I first spoke with the reporter, Maria, in January two months before the race after she’d read […]

{ 0 comments }

Alanna lifting weights in Sydney, Australia and Julie  running in Los Angeles, USA

One of the best parts of the Griffith Park Trial Marathon took place about 10 days BEFORE the race. Arriving home from work one night around 8:00 p.m., I was totally drained and wanted to call it a night, but I had to go running. Ugh. I’d run over 270 miles in four months, and only had […]

{ 1 comment }

IMG_3329

Four months ago, I had the “crazy idea” of signing up for the Griffith Park Trail Marathon. When I signed up, I actually thought I had five months to prepare, when I only had four… What can I say, math isn’t my strong suit. Maybe I should’ve quit then, but if you know me, I’m pretty determined/stubborn. […]

{ 2 comments }

Screen Shot 2017-01-27 at 11.11.45 PM

Two weeks ago, I set out for my longest steepest training run yet to prepare for Griffith Park Trail Marathon on March 4th. I documented my 17.4 mile marathon training experience via Instagram Story and it was so fun, I had to share here: I hope you enjoyed coming along my training run with me! […]

{ 0 comments }

Screen shot 2016-04-03 at 3.38.40 PM

Check out this amazing depiction of terrifying symptom of ‪#‎narcolepsy‬ called CATAPLEXY – created by Eleanor of Falling Asleep: A Narcolepsy Guidebook. Please note: this character is fully conscious and awake yet crumbling to the ground paralyzed. It’s terrifying.   For more infographics, blogs and resources: www.falling-asleep.com Commentary by Julie Flygare: I was 22 when my knees fight buckled while […]

{ 1 comment }

YOU CAN AND YOU WILL (Marathon Part II)

by julie on June 12, 2015

Screen shot 2015-06-05 at 7.30.41 PM

As I crossed the start line of the San Diego Rock n Roll Marathon, runners started passing me. I laughed when a pack of Elvis(s) passed me. Typical. “Slow and steady. No one to beat. Nothing to prove,” I told myself. My shirt was drenched with sweat within 3 miles. Soon my hands raisined and […]

{ 2 comments }

Screen shot 2015-06-05 at 7.33.13 PM

The week of the marathon, I forgot I was running a marathon. “Have you booked your hotel yet?” my co-worker, Betsy asked me on Wednesday. “Uh, no, but I will…” My mind was preoccupied with other efforts, the Jack & Julie Narcolepsy Scholarship and Sleep Walk Dallas. So, I was last minute about everything – […]

{ 1 comment }

11247714_1605973076284116_4246906193986022371_n

Just 9 days until my marathon and I’m super inspired by Louise, Jacob and their crew of 20 people who sported NARCOLEPSY: NOT ALONE for the Great Ocean Road Marathon in Australia last weekend. 12 runners wore the shirts (including 3 young doctors who have promised to spread the word amongst their peers!), and 8 […]

{ 0 comments }

Narcolepsy – Am I Sick or Healthy?

by julie on June 29, 2014

Julie Flygare REMRunner narcolepsy spokesperson author wide awake and dreaming narcolepsy memoir narcoleptic project sleep health sleepiness runner inspiring narcolepsy advocate

If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest […]

{ 8 comments }

narcolepsy 504 plan for student narcolepsy high school tips parents diana brooks

REM Runner’s Note: Diana is the mother of Danielle Brooks – an amazing, artistic and athletic young woman with narcolepsy who created www.succeedingwithnarcolepsy.com. In this guest post, Diana offers insightful tips for navigating the school accommodations process and helping your student with narcolepsy succeed.  Diana’s Guest Post: 1. You must be an advocate for your child. No […]

{ 3 comments }