Returning to yoga yesterday was like a homecoming celebration. Last fall, I stopped practicing yoga due to a back injury. My doctor had recommended I take time off from exercising and unfortunately, I took his advice. In truth, his advice was convenient because I wasn’t feeling motivated at the time. Time passed. Too much time. [...]
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On the same steps where Martin Luther King, Jr. gave his “I Have A Dream” speech, over 125 participants gathered last Sunday (March 3, 2013) to share their dream for America to get a good night’s sleep. The third annual National Sleep Walk brought together doctors, organization leaders, patients and sleep supporters from as far away as [...]
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REM Runner’s Note: I asked my dear friend and Narcolepsy Bed Race creator, Dr. Mark Patterson to write a post about his exciting event on March 9, 2013 in Roanoke, VA. I’m inspired by Dr. Patterson’s efforts. Join me in cheering him on! Guest Post Written by Dr. Mark Patterson: Following a family member’s diagnosis [...]
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In honor of National Sleep Awareness Week, join me for the 3rd Annual National Sleep Walk in Washington DC! Celebrating sleep health & sleep disorder awareness When: Sunday March 3, 2013 at 10:00 a.m. Where: Lincoln Memorial Reflecting Pool Steps, National Mall, Washington DC (view google map) Who: Free for all who register online. (First 100 registrants receive t-shirt!) What to bring: Walking shoes & [...]
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This Saturday, December 8, 2012 at 8 a.m. (EST) - Discovery Channel airs Narcolepsy: New Strategies for Diagnosis and Treatment, featuring my story, along with a panel of experts and a second patient perspective. The program will air a second time on Saturday, Dec. 22, 2012 at 8 a.m. (EST). It was an honor to work [...]
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Pictures are worth a thousand words. Here’s a short video re-capping my quest to honor my dad in the Mount Washington Road Race 2012 while living with narcolepsy. Music: “We Can” by Jesse Ruben. This song helped me up the mountain. The artist generously gave me permission to use it in my video, so [...]
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Today’s Portsmouth Herald features an article about my quest to honor my dad, Tom Flygare by running Mt Washington Road Race on Saturday while living with narcolepsy with cataplexy. Read: “Flygare to run Mt Washington race in honor of her dad,” by Charles McMahon, Portsmouth Herald, June 15, 2012. Please consider supporting my quest here. Packing for my [...]
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With one week until I take on “one of the most grueling road races in the world,” I must admit, I entered this race blindly. My heart said “Yes!” before my body and brain weighed in. I wanted to honor my father on Father’s Day weekend. When I began training, I realized this mountain was a bit [...]
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I QUIT! In less than one mile. I felt more exhausted than after finishing the Boston Marathon. How could this be? I was scheduled for one of my hardest training workouts for MWRR, yet I was truly running on empty. Oddly, this was not an episode of EDS (excessive daytime sleepiness) associated with narcolepsy, I’d [...]
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“The next time you encounter fear, consider yourself lucky.This is where the courage comes in. Usually we think that brave people have no fear. The truth is that they are intimate with fear.” -Pema Chödrön Today is one of my final hard training days before I take on “one of the most grueling road races in [...]
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