Exercise and Narcolepsy

Up/Lifted Podcast Featuring Narcolepsy

by julie on July 9, 2017

I’m honored to be the first female guest on the Up/Lifted Podcast this week! Up/Lifted is a cool new podcast hosted by Arin Gragossian about “personal history, pivotal moments, & honest stories. And sometimes lifting massive amounts of weight.” On this show, Arin and I did NOT lift weights, but talked living with invisible chronic health conditions, narcolepsy, Project […]

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CNN Article on My Marathon with Narcolepsy

by julie on April 27, 2017

I’m thrilled to share CNN Health’s feature article Runner: Having narcolepsy is harder than a marathon. This Sleep Awareness Week, please share with your friends and family to raise critical narcolepsy awareness. Working with CNN on this piece was particularly meaningful. I first spoke with the reporter, Maria, in January two months before the race after she’d read […]

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One of the best parts of the Griffith Park Trial Marathon took place about 10 days BEFORE the race. Arriving home from work one night around 8:00 p.m., I was totally drained and wanted to call it a night, but I had to go running. Ugh. I’d run over 270 miles in four months, and only had […]

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Four months ago, I had the “crazy idea” of signing up for the Griffith Park Trail Marathon. When I signed up, I actually thought I had five months to prepare, when I only had four… What can I say, math isn’t my strong suit. Maybe I should’ve quit then, but if you know me, I’m pretty determined/stubborn. […]

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Two weeks ago, I set out for my longest steepest training run yet to prepare for Griffith Park Trail Marathon on March 4th. I documented my 17.4 mile marathon training experience via Instagram Story and it was so fun, I had to share here: I hope you enjoyed coming along my training run with me! […]

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Check out this amazing depiction of terrifying symptom of ‪#‎narcolepsy‬ called CATAPLEXY – created by Eleanor of Falling Asleep: A Narcolepsy Guidebook. Please note: this character is fully conscious and awake yet crumbling to the ground paralyzed. It’s terrifying.   For more infographics, blogs and resources: www.falling-asleep.com Commentary by Julie Flygare: I was 22 when my knees fight buckled while […]

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YOU CAN AND YOU WILL (Marathon Part II)

by julie on June 12, 2015

As I crossed the start line of the San Diego Rock n Roll Marathon, runners started passing me. I laughed when a pack of Elvis(s) passed me. Typical. “Slow and steady. No one to beat. Nothing to prove,” I told myself. My shirt was drenched with sweat within 3 miles. Soon my hands raisined and […]

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The week of the marathon, I forgot I was running a marathon. “Have you booked your hotel yet?” my co-worker, Betsy asked me on Wednesday. “Uh, no, but I will…” My mind was preoccupied with other efforts, the Jack & Julie Narcolepsy Scholarship and Sleep Walk Dallas. So, I was last minute about everything – […]

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Just 9 days until my marathon and I’m super inspired by Louise, Jacob and their crew of 20 people who sported NARCOLEPSY: NOT ALONE for the Great Ocean Road Marathon in Australia last weekend. 12 runners wore the shirts (including 3 young doctors who have promised to spread the word amongst their peers!), and 8 […]

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Narcolepsy – Am I Sick or Healthy?

by julie on June 29, 2014

If sickness and health are two opposite ends of the spectrum, then where do I fit in? The other day, I battled excruciating eye-burning sleepiness that felt like pure torture/hell. That same day, I also ran 3 beautiful miles in the golden California sunshine. Am I the sickest healthy person you know or the healthiest […]

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