Dreams

Tune in to the Doctors TV Show this Monday Feb. 9, I’ll be sharing my journey with narcolepsy – including sleepiness, cataplexy, sleep paralysis and hypnagogic hallucinations . See full information here. Watch TV interview online: Web exclusive extended version: Crafting an honest and accurate portrayal of narcolepsy with the Doctors TV Show was a lot of fun.  I […]

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Another Restless Night: Poem by Denna Noah

by julie on October 16, 2013

Darkness fallsSleep eventually tooSandman fails to allow deep slumberLike he allows for you My body is exhausted And it cannot keep onIt shuts itself downUnfortunately not for long In your eyes I appear to restBut here, where I amIt’s such a mess Shhhhh I hear him comingCircling through my house Walking room to roomI remain quiet as […]

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Tim Mirror Wales 2013

REM Runner’s Note: Tim created this unique photo for the NARCOLEPSY: NOT ALONE campaign. Read his amazing description below. Thank you, Tim! Tim’s Guest Post: Having narcolepsy can be confusing. Reality as experienced by a narcoleptic may often be distorted. Dream fragments live large in the mind and memories are unreliable. It can sometimes be […]

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Perception TV Show Features Narcolepsy

by julie on July 10, 2013

TNT’s crime-drama TV series, Perception, featured narcolepsy on a recent episode, “Alienation” (Season 2, Episode 2).   Watch narcolepsy clip here: One character describes aliens coming into his bedroom shortly after he’s gone to sleep. This terrifying description caputures sleep paralysis (the inability to move) AND hypnagogic hallucination (seeing the aliens in his bedroom as if […]

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On the same steps where Martin Luther King, Jr. gave his “I Have A Dream” speech, over 125 participants gathered last Sunday (March 3, 2013) to share their dream for America to get a good night’s sleep. The third annual National Sleep Walk brought together doctors, organization leaders, patients and sleep supporters from as far away as […]

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Things I Love: PWNY Beads Dreamy Designs

by julie on February 14, 2013

“Passionate people embrace what they love and never let it go. Those who say it cannot be done should not interrupt those of us who are doing it.” -Julie Ann Funk, PWNY Beads Owner, Maker, Designer Chronic illness can be ugly. So when I discovered PWNY Beads jewelry & replacement Medical ID bracelets, I smiled long […]

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I’m thrilled to release my latest video exploring hypnagogic hallucinations and sleep paralysis – two symptoms of narcolepsy. Thanks for watching, come back soon for more. Big thanks to Alex Withrow for giving his time and pro video production skills to make this possible! Watch All on YouTube Watch Video #9: Why I Wrote a […]

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When pursuing your dreams – ignore all nay-sayers & dream-squashers. Careful, our biggest critic lives in our own heads. Don’t listen. Believe that there is a force in you, built of everything “good” and “bad” in you, that is just getting started. Believe that if you keep putting one foot in front of the other, you will […]

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Discovery Channel Narcolepsy Video

by julie on December 9, 2012

Here’s the video from the Discovery Channel’s recent Narcolepsy Program (my spotlight begins just after 16 minutes). I especially enjoyed Dr. Joseph Lieberman’s insight and the other patient, Kelly’s story.  Narcolepsy: New Strategies for Diagnosis and Treatment will air on the Discovery Channel again on Saturday, Dec. 22, 2012 at 8 a.m. Download the podcast and […]

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For the third year in a row, I’m inviting all Halloween enthusiasts to design sleep-themed pumpkins for REM Runner’s Virtual Pumpkin Patch!  1. Create your own SLEEP/DREAM-themed PUMPKIN. Be creative – Is your pumpkin having a dream or nightmare? Snoring? Cat-napping? Anything sleep or dream related goes. 2. Send me a photo of your pumpkin […]

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