Diagnosis

Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient […]

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Narcolepsy Lunch Break Webinar

by julie on January 14, 2014

Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET  Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD […]

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Dear Diagnosis Blogathon

by julie on October 6, 2013

If you could go back and speak to yourself on your diagnosis day, what would you say?   “Dear Diagnosis” is a Blogathon inviting all narcolepsy and chronic disease bloggers to write a letter to yourself on your diagnosis day. BLOGATHON PARTICIPANTS: An Unnatural Athlete – “Dear Jill” Norexin – “Dear Meaghan” Guest Post – […]

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This Wednesday, Sept. 4, 2013 at 1:00 p.m. EST, U.S. News will host a Twitter  on sleep health and sleep disorders. I am co-leading this event along with @USNewsHealth, @nih_nhlbi, @NIOSH, @CDCChronic, @REMRunner and @PennMedNews.  Join the conversation: http://tweetchat.com/room/sleephealth (use hashtag #sleephealth) When: Wednesday, Sept. 4 at 1 p.m. EST. Why: Between 50 and 70 million U.S. adults have sleep or wakefulness disorders, which include […]

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Hello from SLEEP 2013!

by julie on June 8, 2013

This week, I attended and spoke at the APSS SLEEP Meeting, a.k.a. “the Superbowl of Sleep.” Thousands of sleep researchers and clinicians from all over the world attended this meeting on June 1-5 in Baltimore, MD. On Wednesday, I participated on a pediatric narcolepsy panel hosted by Dr. Judith Owens with pediatric specialists, other patients […]

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As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms?   My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you […]

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Julie Flygare Featured on Dr. Don Show

by julie on April 29, 2013

On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio stations (KAAA 1230 AM and KZZZ 1490 AM). It was so much fun to discuss my book with Dr. […]

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How Awake Are You? Game Measures Sleepiness

by julie on April 10, 2013

Recently, I discovered Harvard’s Healthy Sleep website featuring the “How Awake Are You?” interactive game. In 5 minutes, it analyzes your wakefulness. Th game is an online adaptation of performance tests commonly used in research labs to examine the effects of sleep deprivation. When I played, I felt a bit sleepy and the program picked up […]

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Narcolepsy Videos Featured on EmpowHER

by julie on March 23, 2013

Recently, I shared my story of narcolepsy with renowned women’s health advocate and EmpowHER founder, Michelle King Robson. EmpowHER is an award-winning social health company for women, providing visitors access to one of the largest women’s health and wellness content libraries on the web, as well as the largest online community of women discussing their […]

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“I wanted to ensure her that I love her and would support her through anything.” -Kevin Gonzales REM Runner’s Note: This is a story of love. I was thrilled to learn about the Dream Big Concert and even more thrilled to hear Kevin and Megan’s journey toward creating this event. I asked Kevin to write a […]

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