Diagnosis

Tune in to the Doctors TV Show this Monday Feb. 9, I’ll be sharing my journey with narcolepsy – including sleepiness, cataplexy, sleep paralysis and hypnagogic hallucinations . See full information here. Watch TV interview online: Web exclusive extended version: Crafting an honest and accurate portrayal of narcolepsy with the Doctors TV Show was a lot of fun.  I […]

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A Day In The Life… NPR Features Narcolepsy

by julie on February 7, 2015

I’m thrilled that NPR station WHYY featured my story of narcolepsy on the radio today. Listen online here: “A Day In The Life of a Narcoleptic” by Steven Jackson. When the reporter for NPR asked to follow me around for 24 hours, I said “YES!” right away. I’m always looking to raise awareness about narcolepsy.  I am […]

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 Thank you to everyone who tuned in today for my international narcolepsy broadcast! If you missed it, watch on YouTube or below: Friends all over the US and around the world in Canada, Europe and Australia watched live! Thank you for your incredible support. Happy Suddenly Sleepy Saturday!

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Last Friday, Jan. 31, I shared my inspirational narcolepsy story at UCLA Medical School. In one hour, we laughed, cried and changed perceptions about narcolepsy in future doctors. The medical students had recently studied narcolepsy in their curriculum – briefly learning the symptoms and watching a few YouTube videos. I was honored to add my patient […]

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Narcolepsy Lunch Break Webinar

by julie on January 14, 2014

Join me this Wednesday, Jan. 15 at 1:30 p.m. ET for a very special free online event – I will be hosting a Lunch Break Educational Webinar with the American Sleep and Breathing Academy. Register here. When: Wednesday, January 15, 2014 from 1:30 p.m. to 2:30 p.m. ET  Debunking the Narcolepsy MythA Presentation by: Julie Flygare, JD […]

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Dear Diagnosis Blogathon

by julie on October 6, 2013

If you could go back and speak to yourself on your diagnosis day, what would you say?   “Dear Diagnosis” is a Blogathon inviting all narcolepsy and chronic disease bloggers to write a letter to yourself on your diagnosis day. BLOGATHON PARTICIPANTS: An Unnatural Athlete – “Dear Jill” Norexin – “Dear Meaghan” Guest Post – […]

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This Wednesday, Sept. 4, 2013 at 1:00 p.m. EST, U.S. News will host a Twitter  on sleep health and sleep disorders. I am co-leading this event along with @USNewsHealth, @nih_nhlbi, @NIOSH, @CDCChronic, @REMRunner and @PennMedNews.  Join the conversation: http://tweetchat.com/room/sleephealth (use hashtag #sleephealth) When: Wednesday, Sept. 4 at 1 p.m. EST. Why: Between 50 and 70 million U.S. adults have sleep or wakefulness disorders, which include […]

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Hello from SLEEP 2013!

by julie on June 8, 2013

This week, I attended and spoke at the APSS SLEEP Meeting, a.k.a. “the Superbowl of Sleep.” Thousands of sleep researchers and clinicians from all over the world attended this meeting on June 1-5 in Baltimore, MD. On Wednesday, I participated on a pediatric narcolepsy panel hosted by Dr. Judith Owens with pediatric specialists, other patients […]

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As a person with narcolepsy, a sleep disorder or chronic illness, what’s your take on exercise? Too tired? Crucial to your health? Improve your symptoms?   My latest video explores my experience as an athlete with narcolepsy and offers tips for successfully incorporating exercise into your life. Come back for more videos soon! Thank you […]

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Julie Flygare Featured on Dr. Don Show

by julie on April 29, 2013

On Friday afternoon, I had the pleasure of being on the Dr. Don Show to talk about Wide Awake and Dreaming: A Memoir of Narcolepsy. Listen online here. Friday’s show aired live on two Arizona radio stations (KAAA 1230 AM and KZZZ 1490 AM). It was so much fun to discuss my book with Dr. […]

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