Dating with Narcolepsy

REM Runner’s note: Recently, Elaine of Chica Siesta joined the NARCOLEPSY: NOT ALONE campaign. After reading her beautiful blog, I asked her to share in a guest post here. Please enjoy Elaine’s powerful and fresh voice. Read more at chicasiesta.wordpress.com.  Syncopation – by Elaine Golden Recently, my friends and I went swing dancing at a jazz club […]

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Over the weekend, the Executive Producer of The Simpsons, Al Jean, corresponded briefly regarding the Homer Simpson narcolepsy news via Twitter. First, he tweeted “.@thesimpsons Extremely interesting article about the true dangers of narcolepsy” to share the NY Post article on my experience with narcolepsy (re-published from Women’s Health Magazine). View the tweet here and retweet! I responded, […]

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It seems that Hollywood has a surprisingly large percentage of cases of narcolepsy, a disorder affecting 1 in 2,000 people, about 200,000 Americans and 3 million people worldwide, including many children and young adults. The latest Hollywood victim is Homer Simpson. Word on the street is he going to discover he has narcolepsy in the […]

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My boyfriend and I speak in spoons. If you don’t know what I’m talking about, read The Spoon Theory by Christine Miserandino now. Seriously, stop everything and visit: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/. Alex has been really supportive of my narcolepsy from day one. We quickly fell into great routines for managing my excessive sleepiness and cataplexy. Yet, my narcolepsy is so much more than […]

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Supporting a Friend With Narcolepsy

by julie on August 8, 2014

If your friend or loved one was diagnosed with narcolepsy, you may wonder the best way show support. You want to help your friend through this difficult time, but it can be hard to know what to say or do. While there are no set rules for supporting a friend with narcolepsy, I hope these […]

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Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below […]

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REM Runner’s Note: Planning pregnancy with narcolepsy? I’m thrilled to share guest stories about pregnancy and parenting with narcolepsy. It’s such an important topic for many and personally, I think parents with narcolepsy are SUPERHEROES!  Thank you, Natalie for sharing your experience and congratulations on being a new mom. Natalie’s Guest Post: My husband and […]

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This weekend, I will be speaking and signing books at the 28th Annual Narcolepsy Network Conference in Atlanta, GA. This is always an exciting weekend for me – as I get to see old friends and meet many new friends! Books: I’m offering a discount conference rate on personalized signed copies of Wide Awake and […]

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Beauty OR The Beast? Napping with Narcolepsy

by julie on October 3, 2013

I nap once or twice (or three times) every day. While napping, I may look like Sleeping Beauty, but waking up – I’m never quite sure who I’ll be – a kind calm beauty OR an angry beast. The trouble with napping: For me, napping is not pleasant. My naps are high-speed rollercoaster rides of […]

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My boyfriend, Alex recently surprised me with a trip to Ultra Music Festival in Miami, FL – the world’s largest electronic concert. As a music lover, I was thrilled. As a person with narcolepsy, I was nervous.  Over 300,000 people attend this three day dance party with seven stages and over 150 performers including world-famous Tiesto, […]

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