Live Book Events: Reading Narcolepsy Memoir

This Thursday! Join me for the FIRST-EVER online live reading of Wide Awake and Dreaming: A Memoir of Narcolepsy! I will go LIVE via my Instagram (@REMRunner) to read the first chapter of my book: Melting, this Thursday May 13th at 8pm ET. After I read the chapter, I’ll answer any questions you have live about…

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Syncopation – Dancing with Narcolepsy & Cataplexy Guest Post by Elaine Golden

REM Runner’s note: Recently, Elaine of Chica Siesta joined the NARCOLEPSY: NOT ALONE campaign. After reading her beautiful blog, I asked her to share in a guest post here. Please enjoy Elaine’s powerful and fresh voice. Read more at chicasiesta.wordpress.com.  Syncopation – by Elaine Golden Recently, my friends and I went swing dancing at a jazz club…

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Update: The Simpsons Executive Producer Responds

Over the weekend, the Executive Producer of The Simpsons, Al Jean, corresponded briefly regarding the Homer Simpson narcolepsy news via Twitter. First, he tweeted “.@thesimpsons Extremely interesting article about the true dangers of narcolepsy” to share the NY Post article on my experience with narcolepsy (re-published from Women’s Health Magazine). View the tweet here and retweet! I responded,…

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Narcolepsy Epidemic in Hollywood – Homer Simpson Latest Victim

It seems that Hollywood has a surprisingly large percentage of cases of narcolepsy, a disorder affecting 1 in 2,000 people, about 200,000 Americans and 3 million people worldwide, including many children and young adults. The latest Hollywood victim is Homer Simpson. Word on the street is he going to discover he has narcolepsy in the…

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Speaking in Spoons – The Spoon Theory and Narcolepsy

My boyfriend and I speak in spoons. If you don’t know what I’m talking about, read The Spoon Theory by Christine Miserandino now. Seriously, stop everything and visit: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/. Alex has been really supportive of my narcolepsy from day one. We quickly fell into great routines for managing my excessive sleepiness and cataplexy. Yet, my narcolepsy is so much more than…

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Supporting a Friend With Narcolepsy

If your friend or loved one was diagnosed with narcolepsy, you may wonder the best way show support. You want to help your friend through this difficult time, but it can be hard to know what to say or do. While there are no set rules for supporting a friend with narcolepsy, I hope these…

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Join Julie for International Narcolepsy Broadcast on Suddenly Sleepy Saturday

Join me for a FREE international live broadcast, “Celebrating Narcolepsy Awareness” on Suddenly Sleepy Saturday, March 8, 2014 at 4:00 p.m. (EST). This presentation offers vivid description of the narcolepsy journey from mysterious symptoms to diagnosis and treatment. Highlights my inspiring transformation from hiding narcolepsy to living proud and out loud as a spokesperson. Register below…

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Pregnancy with Narcolepsy: Guest Post by Natalie Kwadrans

REM Runner’s Note: Planning pregnancy with narcolepsy? I’m thrilled to share guest stories about pregnancy and parenting with narcolepsy. It’s such an important topic for many and personally, I think parents with narcolepsy are SUPERHEROES!  Thank you, Natalie for sharing your experience and congratulations on being a new mom. Natalie’s Guest Post: My husband and…

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