Cataplexy

Raising Narcolepsy Awareness in Italy!

by julie on November 13, 2016

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On Saturday Sept. 24, 2016, I stood outside the fancy lecture hall at the University of Bologna in Italy, fidgeting with nerves. I picked up my headset for the “live translation” system that would be my lifeline for the day. Traveling to Italy to speak at the 20th Anniversary of AIN (Associazione Italiana Narcolettici e […]

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Narcolepsy Advocate in Neurology Now Magazine

by julie on October 12, 2016

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Hot off the presses! I’m proud to be featured in Neurology Now’s article, Self Diagnose Successfully, on becoming an empowered and informed patient. I love Neurology Now magazine but narcolepsy isn’t included much, so I am thrilled to help raise some narcolepsy awareness with this neurology audience. Also, it’s super cool that my MedX friend, Matthew Might is […]

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I received the following comment on my recent blog post and wanted to respond here. ************ Dear N. Leptic, Thank you for taking an interest in learning more about my experience with narcolepsy. First of all, I am so sorry to hear about your challenging experience with narcolepsy. It sounds like you are facing some very real and significant […]

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This Monday, August 8, my presentation, “I Have Narcolepsy. Do You?” will air to tens of thousands of online viewers as part of the Sleep Success Summit. Register for free today. The Sleep Success Summit is a free online event (August 8-15), featuring over 30 experts discussing a wide range of sleep health and sleep disorder topics. With tens of thousands of viewers expected […]

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I’m so honored to be a keynote speaker at Health:Further Summit in Nashville, TN on August 23-24, where I’ll join the stage with industry leaders to talk innovation and advanced solutions for the biggest issues facing healthcare. For this audience of healthcare executives and innovators, I’ll debut a new speech called, In Sickness or Health? Breaking Down Barriers […]

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I’m thrilled to share CBS News Los Angeles’ awesome segment on my experience with narcolepsy. Please WATCH & SHARE (http://cbsloc.al/291UTw6): On Monday June 27, this segment aired during the 5 o’clock evening news, highlighting my sleepiness, cataplexy, and the challenges napping as an adult.  The news piece also mentioned my non-profit, Project Sleep, my book “Wide Awake and Dreaming: A Memoir of Narcolepsy” […]

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On June 2, 2016, I had the honor of attending the White House/Stanford Medicine X workshop, “Engaging Participants as Partners in Research”, as part of President Obama’s Precision Medicine Initiative. This event far exceeded my wildest expectations. But first, some context. It’s Gonna Be a Good Day: The day before going to the White House, on […]

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Check out this amazing depiction of terrifying symptom of ‪#‎narcolepsy‬ called CATAPLEXY – created by Eleanor of Falling Asleep: A Narcolepsy Guidebook. Please note: this character is fully conscious and awake yet crumbling to the ground paralyzed. It’s terrifying.   For more infographics, blogs and resources: www.falling-asleep.com Commentary by Julie Flygare: I was 22 when my knees fight buckled while […]

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I recently created my first Flipagram, highlighting the NARCOLEPSY: NOT ALONE campaign! I hope you enjoy and please share with friends and family. Watch here: Thanks for watching my first Flipagram! NARCOLEPSY: NOT ALONE has over 1,200 photos of people with narcolepsy and supporters from all 50 U.S. States and 48 countries around the world. Of course, this campaign is not […]

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For one week, download Kindle version of Wide Awake and Dreaming: A Memoir of Narcolepsy for just $0.99. To inspire more readers this holiday season, I’ve discounted my e-book from $8.99 to $0.99. Please share or gift this to friends and family members. Together, we are building a brighter future for narcolepsy, and I’m so grateful for your support! Purchase […]

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