NARCOLEPSY: NOT ALONE 10 Days Update

Ten days ago, I launched the NARCOLEPSY: NOT ALONE campaign with excitement and nerves. Would people join me? Today, the campaign has 130 photos from 31 states and 14 countries (VIEW GALLERY & MAP)! Highlights: Countries include: Australia, Canada, Columbia, Ireland, Japan, Kenya, The Netherlands, New Zealand, South Africa, South Korea, Spain, United Kingdom, United States, and Wales. One…

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Pausing to Say I Love You: Guest Post by Michelle Hemingway

REM Runner’s Note: I met Michelle at my first NN Conference five years ago and we’ve remained dear friends ever since. In this post, Michelle describes participating in the NARCOLEPSY: NOT ALONE campaign. Michelle’s Guest Post: I was honored to participate in the Narcolepsy: Not Alone campaign. And that is exactly how my family and friends felt…

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NARCOLEPSY: NOT ALONE Campaign Launch

Lost and alone. We’ve all been there. Today, I’m launching the NARCOLEPSY: NOT ALONE awareness campaign – to prove that narcolepsy is REAL and that we are NOT ALONE. People with narcolepsy AND supporters are invited to submit photos for the GALLERY & MAP.  Watch introductory video: Join Us: People with narcolepsy AND supporters around the…

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Meeting My Hero, Dr. Oliver Sacks

“Writing is better than morphine.” -Dr. Oliver Sacks This week, I had the opportunity to attend a book event with Dr. Oliver Sacks at Sixth & I in Washington, DC. Dr. Sacks discussed his recent book, Hallucinations – which includes a chapter on narcolepsy’s hypnagogic hallucinations.  Dr. Sacks explained, “Hallucinations are high-jacking your perceptual system… You…

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The Making of the Narcolepsy Infographic

In just one week, over 20,000 people have viewed the narcolepsy infographic! Here’s how my dream became a reality. What about narcolepsy? After viewing many cool health and disease infographics this past year, I couldn’t help but wonder, “What about narcolepsy?” This made me sad. Narcolepsy deserved an infographic too, but how? I wasn’t a graphic designer…

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Narcolepsy Infographic: What Is Narcolepsy?

I’m so excited to release my narcolepsy infographic! This is the FIRST infographic dedicated to raising awareness about narcolepsy. Please share! Unveiling Narcolepsy Infographic Video: Narcolepsy Infographic: DOWNLOAD FILE Thank you to my amazing graphic designer, Anthony Nesossis.  Thank you to Alex Withrow for his pro video production!  Read about the making of the infographic here.…

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Narcolepsy – NOT Normal and NOT Alone

Narcolepsy is NOT normal. But who wants to be “normal” anyway? This video is an empowering salute to all those who are “different” for whatever reason.   As young adults- “fitting in” seems so important. All too often, children and teens with narcolepsy face unfair ridicule, bullying, and lame jokes. Hang in there. I promise…

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Top 8 Tricks for Accessing “Happy” Now

“The time to be happy is now,” my yoga instructor said yesterday. Sounds simple, but happiness is elusive and can’t be ordered on demand like a movie. Or can it?  Scientists have been unlocking the mysteries of happiness. Turns out, happiness is best achieved when we are in the present moment and not letting our…

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A Narco’s Tale: A Poem by Maureen Caden

I was diagnosed in 2003  and like many of us went through many years  with unanswered fears. I knew I was not lazy  as some days became rather hazy.  I would will myself to stay awake  I didn’t even have time to bake a cake.  For sleep time would come  This thing had me under…

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