Art & Creativity

“We may be RARE, but we’ve got ROAR.”-Julie Flygare Yes, I’m (awkwardly) quoting myself today. Happy Rare Disease Day! The rare disease community is a huge source of inspiration to me. Many struggles I thought were “only narcolepsy”, are quite universal for rare disease patients.  We have difficulty finding proper diagnosis. We have limited treatment options, which […]

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inspirational quotes change the secret to change is to focus all of your energy no on fighting the old but on building the new socrates

 “The secret of change is to focus all of your energy, not on fighting the old, but on building the new.” -Socrates  Living with narcolepsy, my energy is limited. It’s important to prioritize carefully and not fight losing battles. What’s done is done. EVER ONWARD!  Inspirational Quote #13: Inspirational Quote #12: Inspirational Quote #11: Inspirational Quote #10: Inspirational Quote […]

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inspirational quotes julie flygare the people who are crazy enough to think they can change the world are the ones who do

“People who are crazy enough to think they can change the world, are the ones who do.”-Apple Computers Thank you to my dear friend, Sunny Dietra in Florida for sending me this quote! 😎 Inspirational Quote #9 Inspirational Quote #10 Inspirational Quote #11 Inspirational Quote #12 Inspirational Quote #13 Check back for more quotes soon!

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“The thing that is really hardand really amazing, is giving up on being perfect and beginningto work on becoming yourself.”-Anna Quindlen Aw, how very true! We all strive for perfection at times. Yet, I try to focus my energy on developing my unique set of talents and skills – with compassion and without comparing myself to others. […]

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“In the end, only three things matter: how much you loved, how gently you lived, and how gracefully you let go of things not meant for you.”-Buddha Inspirational Quote #11:    Inspirational Quote #12:  Inspirational Quote #13:     Check back soon for more inspiring quotes!

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Last year, I enjoyed sharing my top 13 Inspirational Quotes. I’ve decided to do this annually. Living with a life-long invisible illness like narcolepsy, feeling of guilt, regret, shame, and self-doubt inevitably creep in. Positive quotes have helped me combat negativity and stay on track towards achieving my goals. REM Runner’s Top 13 Inspirational Quotes 2014 […]

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Happy Valentine’s Day to my narcolepsy friends across the USA and around the WORLD. Your love has lifted me up.  Your support has given me courage. Your NARCOLEPSY: NOT ALONE photos have warmed my heart hundreds of times over. I’m forever grateful. Valentine’s Day can be a lot of fun, but it can also be […]

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Official NARCOLEPSY: NOT ALONE T-shirts!

by julie on January 7, 2014

The official NARCOLEPSY: NOT ALONE t-shirts are here! Raise awareness about narcolepsy while also supporting a good cause. Proceeds support Project Sleep, my new non-profit raising awareness about sleep health and sleep disorders. Purchase by Jan. 26, 2014. View/Order T-Shirts – Available in three styles: men’s/unisex, women’s fit and youth sizes – ONLY for sale […]

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Guest Post by Solomon Briggs: My name is Solomon Briggs and I have Narcolepsy with Cataplexy. I’ve recently self-published a book of illustrations, descriptions and factual information on this complex condition. It is exactly what the title is: Expressions of my own ‘Narcolepsy with Cataplexy’. As a child I could not raise my arms while being tickled, […]

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Dear Diagnosis Blogathon – Words to Live By

by julie on November 17, 2013

On Nov. 1, I kicked off the “Dear Diagnosis” Blogathon – inviting fellow narcolepsy and chronic disease bloggers to write a letter to themselves on their diagnosis day. So far, I’ve collected 47 inspiring, courageous and beautifully-written letters. (Read here.) In launching this blogathon, I had no grand expectations. I am blown away by the results. […]

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