Advocacy

Weekend Plans? Sleep In to Raise Awareness!

by julie on March 10, 2017

Sleep In 2017 Social Media Shareables I heart someone with sleep disorder

After running Griffith Park Trail Marathon last weekend, I couldn’t be any more excited for Sleep In 2017 (#SleepIn2017) this weekend! Please join me by staying in bed for 12-48 hours to raise awareness about sleep health and sleep disorders. Yep, you heard me right… The challenge is to REST and SLEEP. Register here and invite your friends and family to […]

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We all have a story to tell. Let’s get busy telling yours! I’m so excited to share the news that Project Sleep is now accepting applications for the Rising Voices of Narcolepsy leadership training program. However, the application deadline is quickly approaching in 9 days on February 24th, 2017 at 5:00pm PST, so please view summer 2017 […]

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Meet Sarah, a mental health professional in Chicago who was diagnosed with narcolepsy in 2015 after facing years of mysterious symptoms and misdiagnoses. In this informative iBehaviorCoach Radio podcast hosted by Matt Lawson, Sarah debunks myths and raises important awareness about narcolepsy and the invisible nature of sleepiness. I eagerly tuned in to hear about Sarah’s experience […]

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Two weeks ago, I set out for my longest steepest training run yet to prepare for Griffith Park Trail Marathon on March 4th. I documented my 17.4 mile marathon training experience via Instagram Story and it was so fun, I had to share here: I hope you enjoyed coming along my training run with me! […]

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When I hit “publish” on this post, I will be sharing something I’ve been scared to tell you. So here it goes… On March 4th, I will take on the greatest athletic challenge of my life – the Griffith Park Trail Marathon. Will you support me? This beastly race is 26.2 miles while also climbing 3,669 feet […]

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Narcolepsy Advocate in Neurology Now Magazine

by julie on October 12, 2016

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Hot off the presses! I’m proud to be featured in Neurology Now’s article, Self Diagnose Successfully, on becoming an empowered and informed patient. I love Neurology Now magazine but narcolepsy isn’t included much, so I am thrilled to help raise some narcolepsy awareness with this neurology audience. Also, it’s super cool that my MedX friend, Matthew Might is […]

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I received the following comment on my recent blog post and wanted to respond here. ************ Dear N. Leptic, Thank you for taking an interest in learning more about my experience with narcolepsy. First of all, I am so sorry to hear about your challenging experience with narcolepsy. It sounds like you are facing some very real and significant […]

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On June 2, 2016, I had the honor of attending the White House/Stanford Medicine X workshop, “Engaging Participants as Partners in Research”, as part of President Obama’s Precision Medicine Initiative. This event far exceeded my wildest expectations. But first, some context. It’s Gonna Be a Good Day: The day before going to the White House, on […]

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This week, I received a very special invitation from the WHITE HOUSE! I am so honored to share that on June 2, 2016, I will join the Medicine X and EveryoneIncluded™ family of rockstar advocates and innovators at the White House for an important discussion on patients as equal partners in research, a core goal of President Obama’s […]

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Recently, ‘Captain America: Civil War’ star Jeremy Renner said that he wanted to be “Captain Narcolepsy… so he could nap whenever he wanted” on Live! with Kelly and Michael. Afterward, many people with narcolepsy and their supporters took to social media to respond. One particular response caught my attention – written by Wendy Ellsworth, a 34-year-old registered nurse living […]

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